Beryl's story: Collapsed lung? You still can't have ESA

Beryl is a woman in her 50s, who has worked all her life and feels she’s always done an honest life’s work. She works as a piano tuner – a very physical job, but one she loves and had every intention of continuing until retirement. That is, until she fell ill, in May 2010. At that point, she hoped that the system would provide for her...

Beryl went to A&E in May 2010 barely able to breathe and was told she had dry pleurisy and a collapsed lung. She struggled for every step, fighting to put one foot in front of the other, as she could barely get enough oxygen into her body. Yet when she applied for ESA and attended a medical in this state, she was passed fit for work. The Atos doctor did not even notice that Beryl was presenting with a collapsed lung.

Not being awarded a benefit to which she was entitled, while clearly unable to work, put Beryl into a difficult situation. From having been able to afford what she needed, Beryl had to adjust, juggling household money in order to keep her business afloat, paying bills for things such as a Yellow Pages advert taken out in good faith, but with several months yet to pay.

“It’s not the money,” she told me, “it’s that they don’t believe you. Every time you speak to people on the phone they say ‘I’m sorry to bother you, I can hear that you’re ill’ but the powers that be have decided that I’m fit to work.”

Beryl appealed. She wrote to her MP, and sent a bundle of supporting evidence to the Job Centre, including letters from her GP and her consultant stating that she could barely walk or breathe, and that it would be at least a year before Beryl could hope to have recovered, if indeed she would recover at all. The appeal was heard in December 2010. However, they did not consider any of the new evidence – it was a mere rubberstamp exercise, to confirm the original decision. Although Beryl was too weak to leave the house, now relying on neighbours to bring food and help her to manage, the Job Centre decided she was fit and able to return to work.

Fortunately, Beryl was awarded Disability Living Allowance and a Blue Badge which has helped her to some extent; she won these on the same evidence presented for her ESA application. She has also applied for a tribunal for her ESA, which means that she has to be paid until the tribunal is heard, but she will still have to go through the stress of a hearing to prove entitlement, something Beryl is dreading.

The MP has written asking the Department of Work and Pensions to investigate, and for a copy of their files, but has had no reply.

Beryl is still very unwell. Although she now has a diagnosis, there are no guarantees as to what level her health can be restored – she may be disabled for the rest of her life, and will certainly remain seriously ill for the near future. However, she is still being chased by the Job Centre, because as far as they’re concerned there’s nothing wrong with her.

A lovely lady works all her life, builds up a successful business, pays her taxes – and then the system lets her down when she needs it most. Ten months from when she fell ill Beryl still hasn’t been awarded ESA, but as she can barely manage to make a cup of tea she certainly couldn’t return to work. This is the system we trust to support us when we need it most. The system, quite frankly, is screwed.


[This article was also posted at FlashSays.com]

Euthanasia Kits. Joke or Tragic Truth?

What Do They Know? is a fascinating website. You can submit Freedom of Information requests through it, and view the requests submitted by others, as well as the responses from the various public sector organisations. So you can do a search for, say, work capability assessment and see all the requests and responses made through the site, or search for your local area, or hospital, or a government department.

But when someone sent me a link to this FOI request to the DWP about euthanasia options for those who are removed off DLA / ESA I assumed it was going to be a joke. It turned out, in fact, to be horribly, chillingly apt.

The request by Stuart Wyatt begins,

With your department aiming to remove the benefits from 25% of DLA
claimants, and deem 91% of ESA claimants as fit for work, please
could you inform me what provisions have been made for those
disabled and sick people to choose a quick and painless death in
preference to slow and painful death by starvation, neglect or
homelessness.

and goes on to ask whether ATOS will therefore be providing suicide kits.

The same man has made a video of telephone calls to ATOS asking for the same information.



It would be funny if it wasn't so damn true.

Back to the Freedomof Information request, the DWP have to reply by the 21st February, so do check for their response.

Not fit for work, not fit for benefits.

Many disabled people are currently terrified of the threats to their benefits, and those with mental health problems are especially scared. The benefit system has always been more geared up towards assessing physical impairment, and the new ESA assessments appear to have reinforced rather than reduced the discrepancy.

Meridian Tonight has reported on the case of Nicola Hobbs, who after years of anorexia applied for a job. However, she failed the health test and so was not given employment. As a result of this she applied for benefit and in this case was found fit for work.

A very confusing situation - judged too ill to work when applying for a job, yet fit for work when applying for benefit. But to add insult to injury, these two opposing judgements were made by the same company - ATOS Healthcare, who do the ESA assessments for the government.

Meridian Tonight has a two minute video covering the story on their website. Worryingly, it is not the first time I have heard of cases exactly like this, with ATOS declaring the same person unfit for work when doing an employment health review, yet fit for work when doing a benefit assessment.