Monday, 2 June 2014
He Who Must Not Be Named and National Insurance
I'm calling him that because clearly the constant attention he's getting is giving his party a huge boost in the polls, despite most of the press about it being negative. You can point out that they're homophobic, racist, misogynist, Islamophobic, and all the other -isms and -phobics. Not to mention elephant-haters. But He manages to brush it all aside with a photo call in a pub. They say there's no such thing as bad publicity, and it's clearly true. The more racism and homophobia allegations arose; the higher their poll ratings went.
He's previously distanced himself from the party's 2010 manifesto. A manifesto which said they wanted to drop the rate of Incapacity Benefit/ESA to the same rate as JobSeekers Allowance, and claimed that Disability Living Allowance was an out-of-work benefit for people too ill to work.
But yesterday He defended one point in the manifesto (though admitted it was badly explained 4 years ago): He said that they still want to abolish the National Insurance scheme.
I think all disabled people have had incidents in recent years where we've been on the receiving end of hate crime - or at least harassment - for being "scroungers". Like Pippa's experience of being targeted in the street for walking with a crutch.
National Insurance is the one reason I can look harassers in the eye and confidently say "when I could work I paid my National Insurance premiums. I paid into an insurance scheme so I would be protected if I ever became too ill to work."
National Insurance was a bloody brilliant idea. And it's such a simple plan. You pay into the scheme straight out of your wages so you're looked after both in your old age, and during your working life if you ever become unemployed or too ill to work.
National Insurance gives me a bit of dignity. When other people call me "a burden on the taxpayer," or my inner monologue tells me that I'm "a waste of taxpayers' money" (though it's not just my inner monologue that's called me that); I can tell them (or myself) "I paid into an insurance scheme and now I'm claiming back. It's how insurance works." When Radio 5Live put me up against that rentagob Hopkins who was banging on about how people should use private insurance schemes rather than scrounging taxpayers' money, I could screech over her "I paid for insurance! It's called 'National Insurance' for a reason!"
Now The Party Which Must Not Be Named wants to take that last shred of dignity from me. The party which got the most votes in the election a week and a half ago.
And it really is my last shred of dignity. I'm constantly ashamed of not being able to work. I can't even go to the emergency dentist to get a broken filling fixed without the humiliation of having to say "nothing" in response to the question "what do you do for a living?"
It's not just a matter of pride or shame. There's the practicalities too. What's going to happen to contributory ESA and JSA? Will they only offer means tested benefits for the ill and out-of-work? What about those who've worked and saved for thirty years when they get diagnosed with cancer? Will they no longer be eligible for ESA because they've got too much money for the means test?
Given that they've gotten more promotion than all the other parties combined for the pending Newark by-election; I wouldn't be at all surprised if they've got their first seat in the House of Commons in a couple of weeks. And given how popular they were on May 22nd; I wouldn't be at all surprised if they've got enough seats this time next year to forge a coalition with the Tories. (Because, let's face it, the Lib Dems will be lucky if they've got 10 MPs left. They won't be the Kingmakers next time if it's a hung Parliament.)
I really didn't think it would be possible to be any crueller than the Tories and be popular enough to win elections. Looks like I was wrong.
Wednesday, 25 January 2012
And in the news...
Husband of Debbie Purdy told 'quit work' for benefits.
It's a ridiculous situation, it shouldn't happen, but it does. It's the final paragraph that really irritated me:
The Department for Work and Pensions said it did not comment on individual cases but that planned reforms of the welfare system would benefit people such as Ms Purdy.
In the first half of the sentence the DWP say "we don't comment on individual cases." This is then followed in the second half of the sentence by commenting on an individual case. My cat is more consistent than the average DWP employee and she frequently demands to be petted and then bites me when I touch her.
There's also the problem that the second half of the sentence is a complete lie. Yes, the government are resolving the problem that one can sometimes be better off on benefits than in work. But they're not resolving the problem by improving benefits for families like Purdy's: They're just making everybody poorer.
Many of the benefits to be capped, including housing benefit, are available to people in work on low incomes. By cutting back on these benefits you're making remaining in work harder not easier.
The article says that Purdy gets IB and DLA. DLA is being subjected to 20% cuts and many genuinely ill people are being found fit for work in the IB to ESA moves. Right there is another possibility that these reforms might leave Purdy worse off.
Whenever there's a benefit-related news story the DWP are always given a right-to-reply in which they invariably tell a pack of lies. So why is it that when the right wing press - which unfortunately has to include BBC News these days - run a story straight from the mouths of the DWP that disabled people don't get the same right?
Thursday, 3 November 2011
Panorama - The Price of Hate
As a disabled benefit claimant who sails, I'm wondering whether Panorama will be making a programme on the number of disabled people who will suffer hate attacks as a result of tonight's programme? Personally I'm into double figures with hate attacks from complete strangers who only need to see my crutches to know I'm a fraud and a scrounger and a fake. No need even to know if I'm claiming any benefit - disabled, guilty as charged.
I'm now scared to leave the house tomorrow, isn't that a proud addition to Panorama's legacy!
DavidG
(Sent to Panorama's email address 22:00 3-11-11)
Tuesday, 26 July 2011
DWP Uses BBC as Puppet Yet Again
Today the Work and Pensions Committee released its long-awaited report into the widespread failings in the ATOS execution of the ESA Work Capability Assessment - disabled people being hounded out of their benefits by a foreign-owned multinational with a cushy government contract, sounds like just the kind of story to get any journalist to roll out their righteous indignation, right?
But no, what do the BBC lead with: "Tests claim few benefit claimants 'unfit to work'", with the Work and Pensions Committee report relegated to halfway down the page with a suggestion that there has been 'some criticism' rather than the near universal criticism that is the reality. Purely by coincidence (yeah, right - the last quarterly report released on a Wednesday, not a Tuesday), the DWP have chosen today to release their new ESA figures, again claiming that only 7% of ESA claimants are unfit for work. As I showed in my analysis of the BBC report on the previous figures a more reasonable interpretation would be that 43% of people assessed are unfit for work. Interestingly the DWP's own page on the press release states "New statistics published by DWP today show that over a third (39 per cent) of those who claim Employment and Support Allowance (ESA) are assessed as fit for work." So that would be 61% not assessed as fit to work by the DWP's own statement, when did 61% become 'few'?
That the BBC have to include an 'Analysis' section in their report explaining that the figures are more complex than whether someone is unfit for work or not and have to be taken in context (a context the article fails to provide), no matter the implication the headlines will already have firmly implanted in the reader, suggests that there is division within the newsroom on how the story should be handled, with the authors recognising that the form of the story as cast by editorial diktat will be fundamentally misleading; and if that is the case, then isn't the BBC failing to meet the requirements of its Charter that it serve the public interest?
We've grown to expect the disablist propaganda of the DWP and the outright bigotry of the Daily Mail, a hate-mongering rag which makes the late and unlamented News of the World look like an edition of the Church Times, but shouldn't we expect better of the BBC, shouldn't we DEMAND better of the BBC?
Wednesday, 11 May 2011
That Proverbial 'Bad Back'
Goldfish has already had one pop at this BBC article, but I want to pick it up on a specific point and look at it on a little more personal a basis than I would normally use for WTB.
"during that time there was a widespread belief that back pain could be long-term and could seriously incapacitate people.
Now, people are aware that if they strain a muscle they can be better in a few weeks, Professor Coggon said."
Alleluia! Praise the Lord! I'm cured!
Or maybe not. Maybe there's more to it than the 'good' Professor Coggon is letting on.
We've been seeing a lot of this in the past few months, disabling conditions deliberately undermined to outrage the Tabloidigentsia. Cystic Fibrosis - cough. Epidermylosis Bullosa - blisters. Prader-Willi Syndrome - obese. It's bad enough when they target the rarer conditions without the weight of numbers to enable the people with them to fight back, but a constant in the background statistics when people with these conditions are derided are the far larger figures for 'depression' and 'bad back', with the unspoken intimation that these are just as false. I don't really have the background to discuss clinical depression beyond being sadly aware of how badly skewed are the opinions of the vast majority in our society towards it, but 'a bad back' I have known intimately for twenty-odd years.
The first thing to notice is the labelling, always 'bad back', never 'spinal injury', because that deliberately taps into the undercurrent of belief that we are all shirkers and fakers. Most people have had some experience with back pain, some will even proclaim that they 'suffer with their back', but almost always there will be the implied 'but I cope and so should they'. Then along come tame experts like Professor Coggon, proclaiming that back pain can be cured, if you really want to be cured.
Strangely enough the hired guns always seem to be occupational health doctors, the ones whose bread and butter comes from saying what industry or government wants of them, you never seem to see a spinal surgeon or a pain management specialist up there rubbishing the reality of these disabilities.
A soft tissue spinal injury may have a good chance of healing in a few months, but for many people that healing never occurs, because it isn't simply a pulled muscle - thanks for that one, Professor Coggon! Let's really undermine the shirkers with the most trivial injury imaginable - it's a much more complex situation involving injuries to muscle, bone, nerves and discs. There's a wonderful phenomenon called 'neuroplastic remodelling' in which the spinal cord rewires itself to make pain normal, even if the original injury is gone. Then there's Chronic Pain Syndrome, which is a label for pain that continues longer than 3 months without clear physical cause. Or Facet Joint Syndrome, which is pain from damage to the facet joints at the tip of the wings of the vertebrae, Or Degenerative Disc Disease, in which the discs slowly narrow and can burst, while the vertebrae grow arthritic spurs of new bone, all of the changes constricting the space through which the nerves are meant to pass. And so on. A whole medical speciality's worth of long term conditions that won't magically go away in three months because some hired gun who specialises in 'Occupational Health' says that they should. Even 20 years on I don't really have a clear diagnosis for everything that's going on, my local rheumatology department recently told me they don't actually have anyone qualified to assess my complete set of spinal issues. And I'm far from alone in that. The absence of a definitive diagnosis even after decades of seeing specialists is not a cause for suspicion, it is a recognition of the sheer range and complexity of spinal injuries.
"If it was real it would show up on an x-ray, or an MRI" the self-proclaimed expert in the pub or the office will often claim. Unfortunately self-proclaimed is not the same as actual. I had so many x-rays in the years after I initially became disabled that I was starting to worry about glowing in the dark, never mind cumulative dosage, yet they showed nothing and my consultant was visibly stressed at his failure to isolate the cause because he could see my disability was very real. It finally took a full body bone scan with radioactive tracer to get even a hint of what was going on, and if the problem had been solely neurological, for instance through neuroplastic remodelling, then not even that would have been true. My more recent c-spine problems do show up on MRI, but it was four years from onset of C-spine problems to getting that MRI, 21 years on from first presenting with a clear spinal injury. After 22 years of spinal problems that remains the only spinal MRI I have had, and the analysis makes no reference whatsoever to my still very disabling lumbar spine problems (though it does point out incipient problems in four other major joints). Scans and X-rays are not magical, they do not automatically locate every possible form of spinal injury, sometimes spinal problems are only apparent during dynamic movement or at certain positions, not the neutral postures used for scans and x-rays, and often we have to fight for anything more than the most basic x-ray, and sometimes even that.
Even if we can get people to accept that our disabilities are real, we then face the difficulty of getting them to admit that they are actually disabling. Auntie Agatha may 'suffer terribly' with their back and run three marathons before breakfast, and everyone with an opinion is delighted to explain how they had a bad back once but worked through it, but the reality of long term spinal injuries is in an entirely different dimension to anything most people will ever have encountered. The problem we face is that pain is invisible and that long term pain doesn't go away, it's there one damned day after another. If you're dealing with it every day then whinging about being ill and in pain isn't an option, life goes on and I look the same whether I'm pain free or whether it feels like someone has rammed a dagger into my spine and is laying into it with a sledgehammer. We are often talking about degrees of pain that most people never imagine, never mind encounter, about feeling like bones are sheering apart, or like you have a second degree burn across substantial (and sensitive!) parts of your anatomy. Yes, there are painkillers we can take, all with their own side-effects, but they aren't a solution, when I talk about hammering daggers and extensive burns, those are the sensations with the opiates, not without!
'Surely there's an operation for that?' people ask. Not necessarily, is the unfortunate answer. There's that inconvenient absence of clear diagnoses, for one thing, it is difficult to know what to cut if you don't know what's causing the problem. Then there is the unfortunate reality that cutting may make it worse -- 'Failed Back-Surgery Syndrome' is a very real diagnostic label -- or cause problems at a different level of the spine - a common treatment is to fuse two or more vertebrae into a solid lump, but that simply causes extra stress to the joints on either side of the fusion. Then there are neuroplastic remodelling and Chronic Pain Syndrome, which are by definition independent of any musculo-skeletal clause. Similar problems occur with physiotherapy, which tends to be focussed on those simple pulled muscles and thrashes about in the dark when faced with any more complex problem. Over the years I've had back classes, traction, bracing, manipulation, hydrotherapy, you name it, they've tried it with me, but with no evidence of any joined-up thinking to link one set of treatment to another and try and work out a systematic approach. Eventually those of us who are lucky end up being referred to Chronic Pain Management teams. That is an explicit acknowledgement that the pain isn't going away, that the disability is here to stay and that no more active intervention is envisaged. Forget cure, hello coping.
So the next time Cameron, or Clegg, or Grayling are ranting about how ridiculous it is that people have dared to be disabled for more than 3 minutes without being cured, and there's that big set of statistics on the screen behind him, with 'depression' and 'bad back' highlighted for all to see, remember that the reality you need to consider isn't the one they're painting, it's mine.
More Sloppy BBC 'Journalism'
In a new article on BBC Politics, Auntie takes a look at the situation with WCA and the charities protesting against it (no mention of disabled peoples groups -- I guess we don't count). Just for once they actually give enough detail to demonstrate that there clearly are failures in the design and implementation of WCA, though they do tend to take the Harrington Report on trust.
But then they cite last month's ESA figures and sum them up as "Only 6% of claims - 73,500 people - were considered to be entitled to full ESA support."
Hang on a minute, 6%? Where did that come from? 94% of applicants aren't entitled to ESA?
Look closer and the problem becomes clear, Auntie can't add up.
1,175,700 people applied for ESA in the period covered by the stats.
According to Auntie, 887,300 people (75.5%) had their claims rejected or were forced into withdrawing their claims --which doesn't mean they aren't disabled, flaws in the WCA are, after all, the supposed point of the article. Going to the original DWP source data shows that these split roughly 50:50 (39% 'fit for work': 36% 'withdrew claim').
Which leaves 288,400 people (24.5%) who passed the WCA, four times as many as Auntie's '6%'.
73,500 people (6.25%) passed the WCA and were placed in the Support Group.
Leaving 214,900 people (18.25%) left over. Auntie only missed 200,000+ people from the stats....
Those 214,900 people break down into:
188,300 people (16%) who passed the WCA and were placed in WRAG.
26,700 people (2.25%) who have assessments still in progress and have neither passed nor failed the WCA.
But it's even worse. Those aren't the final figure, they are the statistics before appeal. And the statistics for appeal are that 36% of people found fit for work appeal, and 39% of those succeed.
When you allow for appeals, 235,800 people (20%) have been placed in the WRAG and 77,100 people (7%) have been placed in Support Group, with only 407,300 people (35%) assessed as fit for work.
Disregard the withdrawn claims - Auntie talks about claims being 'considered' and withdrawn ones clearly aren't - and those still in progress to allow us to look only at the assessments that are complete, and we find that the percentages rise to 'Fit For Work': 56.5%, Support Group : 10.5%, WRAG: 32.5%.
So rather than Auntie's 6%, 43% of people who take the WCA actually pass it, 7 times as many as Auntie would have us believe.
You might think that I am being picky, that a careful reading gives most of the figures, that I'm interpreting the data in a different fashion to Auntie, but that isn't the point. Most people don't read articles like this carefully, they don't have the background to know when the figures given by a trusted, supposedly neutral, source are just plain wrong. The impression this article is going to give to most people reading it is that only 6% of ESA applicants are genuinely disabled, and that 94% are faking it or trying it on. I can flag up the flaws in the article, but the damage it does to us is impossible to undo.
Tuesday, 3 May 2011
A Truth No Longer Fit for the BBC
Mark Easton, the BBC's Home Editor, posted a piece on his blog taking apart last week's DWP attack on us. It's a good, solid article with some actual journalism behind it, considerably better than most coverage out of the BBC in the past fortnight, and points out that the truth is something very considerably different to what the DWP's ministers are trying to have us believe.
But then we get to the comment column, which seems to have been lifted from the Daily Heil and is rife with disablist attacks on disabled benefit claimants. Now remember that the BBC is required to take action against disablism as part of its Public Sector Equality Duty, so surely there's something wrong here? Surely every disablist message is in flagrant breach of the house rules? There are also people like me fighting back, but when I posted a piece to show that Mark's article didn't go far enough, that the deliberate distortion of the truth was far greater than even he had assumed, it vanished into the mists of moderation, not just referred to their normal moderators, but booted up the stack to some sort of uber-moderation. And today they've decided it's 'defamatory' and wiped it entirely.
I talked about 'deliberate distortion of the truth' in the preceding paragraph, but the English language has a shorter term for it, we call it lying, and that's the term I used to sum up what Chris Grayling, the DWP, and Labour before them were doing. And that seems to be where the BBC has a problem. It's easy to demonstrate that the DWP press releases deliberately distort the truth and that they reflect Chris Grayling's deliberate attempts to mislead the public, because he's made exactly the same assaults on us verbally, and that means that my statements are no less than the truth and in the public interest, which therefore cannot be defamation. It is in fact exactly the same conclusion reached by Mark Easton's article. But Auntie Beeb is apparently scared to allow the logical conclusion of its own article to be stated aloud, just as it is scared to enforce its own obligation, both moral and legal, to take a stand against disablism.
So here's that truth that is no longer fit for the BBC, unedited and in my own words:
There's the start of a good article here. I say 'the start' because the reality is even more outrageous than Mark paints it and certainly bears little relation to the twisted 'facts' of the DWP's propaganda -- this is the second four day weekend in a row where they've launched an assault on disabled people, you might almost think they were scared of informed debate...
The truth is that I probably became one of those statistics for withdrawn claims last year. I'm disabled with several different spinal injuries and chronic pain syndrome (and maybe some other stuff -- disability is complicated). When I was finally made redundant, after 4 years of fighting to keep my job and taking my ex-employer to an Employment Tribunal for disability discrimination, I tried claiming JSA, but JCP can't cope with you if you're disabled, can't cope with you if you're highly qualified and god help you if you're both. So in the end, after complaints to ministerial level and abject apologies, JCP asked me to move to ESA.
So I put in my application and laboured through the massive ESA50 form, taking about 9 hours to complete it, and that for someone with considerable writing skills and the ability to explain themselves concisely and clearly. Then came the ATOS WCA assessment. ATOS had been warned in advance that I needed an adjustable chair to have any hope of getting through the assessment, inability to sit for any time, or stand, or sometimes even lie down without severe pain being at the core of my disability, my inability to work and therefore my entire claim. No chair. So we abandoned the assessment at the cost of a wasted trip and considerable pain. But the pain continued to increase even after I got home and I spent the next week not knowing even what day it was, the months after wandering around in a daze from the doubled level of painkillers. In the meantime ATOS called me in for another assessment, but it was months before I was well enough to catch up with my mail and only on receiving a letter four months later telling me my claim had been cancelled was I able to chase through the system and find that ATOS had told DWP I had failed to attend the WCA, carefully omitting to mention their failure to provide the required reasonable adjustment.
Common sense prevailed, with the definite sense from DWP of 'God, not another ATOS cock-up!', and my claim was reinstated. My second WCA was barely better than the first -- the details can be read on Where's the Benefit -- but the ultimate result was that I was placed in the ESA WRAG as clearly not currently fit for work.
And yet for several months, possibly even to this day depending on how the reinstated claim was handled, I would have been one of those statistics for withdrawn claims, supposed evidence of fraudulent intent. It was only my bullheadedness and refusal to give up that got me through, ATOS threw every obstable in my path, and for many disabled people, physically disabled as well as mental, the sheer stress of a claim, the utter contempt for disabled people visible in inaccessible forms, inaccessible centres and the contemptuous manner of the medical professionals will result in claims being withdrawn by people with every right to be placed in the WRAG or even the Support Group.
On top of the claims withdrawn due to the stress placed on claimants, we then need to add those JSA claimants parked onto ESA for a week or two because they are temporarily unable to look for work due to illness, even if they're expected to recover long before the assessment, and certainly not to pass the assessment if their illness lasts that long. Or people in employment who have exhausted SSP but will soon recover. Or people with genuine claims who unexpectedly improve. Or people made redundant for narrowly specific medical reasons, say being medically unfit to hold a PSV license, who are required to file for ESA rather than JSA, even with a disability so narrow that they are guaranteed to fail the WCA, even though there's a good chance of them finding another job before the assessment and withdrawing their claim.
The numbers of withdrawn claims aren't evidence of people attempting to defraud the system, that's Chris Grayling and the DWP (and Labour before them) deliberately lying in order to mislead you. The numbers of withdrawn claims are in fact evidence of the system working precisely as designed. The evidence for this is readily accessible, on disability sides, charity sites, advocacy sites, but the Tory Rags, and now it seems the BBC as well, can't be bothered to do basic research and just run with Grayling's hate-filled spite.
Mark is an honourable exception (though needs to dig a little deeper), but when did journalists lose the ability to do basic research and turn into government propaganda mouthpieces?
Thursday, 21 April 2011
Now Even the BBC is Jumping on the Crip-Bashing Bandwagon
It's bad enough when the Tory Rags lay into us after the latest crip-hating press release from the DWP, but in this article even the BBC seems to be jumping on the bandwagon. Oh, there are a few quotes from charities saying it just isn't good enough, but when someone sets out to deliberately villify people for being disabled, then the BBC is required by its Public Sector Equality Duty to challenge that argument, not repeat it. Even, perhaps especially, when the person setting out to villify disabled people is the Prime Minister.
I've commented on the article itself (comments section at the bottom of the page) saying:
"I am appalled by the tone of this story, which doesn't just pander to, but actively participates in the deliberate demonisation of disabled benefit claimants, in direct contravention to the BBC's Public Sector Equality Duty. I will be following this comment with a formal complaint. As a disabled person with a complex spinal problem I feel directly attacked by this article. I am not a benefit claimant through choice, I spent four years fighting a discriminatory employer to remain in work. My situation has deteriorated to the point even the new system recognises that I am currently unable to work, but the government persists in demonising all disabled benefit claimants. It is bad enough that I find myself attacked on a daily basis in the Tory rags, but to now find that I am being attacked by the BBC is beyond the pale."
I've also filed a formal complaint about the article on the BBC's complaints page:
"Deliberate demonisation of disabled benefit claimants
The article is an uncritical parroting of a DWP press release intended to stigmatise disabled benefit claimants in order to increase public support for changes to the benefit system. The reality for disabled people is a rapidly increasing climate of fear in which, benefit claimants or not, we face attacks in the press and abuse and even physical attack in the street. Under the Public Sector Equality Duty the BBC is required to take action to promote the equality of disabled people, this article instead sets us up as a target for abuse.
I fought for four years against a discriminatory employer to avoid being made redundant because of my disability. I have made every effort possible to remain in work and now to find work, but the reality is that my disability is worsening, not improving and even the new system accepts that I am currently not able to work. Yet I find myself being attacked at every turn by the DWP's campaign and its sycophantic press. My own disability is a complex spinal problem that limits every aspect of my life, yet the DWP reduces that to 'back problems' and a nudge-nudge, wink-wink implication that I'm just swinging the lead, because 'everyone knows' back problems aren't serious. Just because 'everyone knows it' doesn't make it true and the BBC is mandated by its Public Sector Equality Duty to actively challenge the casual discrimination against disabled people implicit in attitudes of this kind.
And what applies to one disability applies to all, and the BBC's acquiescence in the DWP's deliberate disablism is implicit in the article's outright attack on claimants with addictions or obesity. Despite their misuse as diagnostic labels by DWP, addiction and obesity to the degree of being unfit for work are almost universally symptoms of wider psychological or physiological disorders, for instance Prader-Willi Syndrome. To attack a benefit claimant for being addicted or obese is to attack them for being disabled, which is disability related harassment in contravention of the Equality Act. To participate in that harassment calls the legality of the report into direct question and in my opinion the BBC is not simply failing to meet its legal obligation under its Public Sector Equality Duty but actively participating in a hate crime.
It doesn't matter if the Prime Minister is the one to say it, any statement leading to a disabled person feeling harassed or intimidated is disability related harassment and as a disabled person I find his statements offensive and intimidatory and I view the BBC's unquestioned repetition of them in precisely the same light.
My fears and the perception of being attacked by government and media at every step are not simply my own, they are echoed by the vast majority of disabled people I know. We find ourselves increasingly living in a climate of fear engendered by a deliberate demonisation of disabled people by government and DWP and their allies in the right-wing tabloids intended to allow them to gut support for disabled people while convincing the non-disabled population we are nothing but feckless parasites. I and others have been harassed on the street by complete strangers with no idea if we are benefit claimants, simply that we dare to be disabled in public is enough to trigger their xenophobic hatred and abusive claims that we are benefit frauds and faking our disabilities. It is the BBC's responsibility to highlight this behaviour as unacceptable, not serve as its cheerleader. I have given up hope of being treated as an equal in the Tory rags, but I had expected better of the BBC."
I expect they'll just try to write it off, saying that quoting a charity or two gives the article balance, but we all know that isn't the impression casual readers will get, and the difference between the BBC and the Tory Rags is that the BBC is subject to the Public Sector Equality Duty and expected to take a stand against disablism. Or at least that is the way it is supposed to be, sadly the reality now appears to be something else entirely.
If anyone wants to join me in complaining about the article, please feel free to use any or all of the words above.
Wednesday, 25 August 2010
BBC Documentary Seeking Families with Disabled Children on Benefits
They have sent me further information so that I could post the request here, in case any readers are interested in taking part.

[Image text reads: MY LIFE DOCUMENTARY. BBC One is making a film about children growing up in low income families. We are looking for chatty children, happy to talk about family life, having fun, where they live, school, hopes and dreams...
If you are, or if you know a child aged 7-12 years who you think might like to take part, then please call / text Tim on 07968 721299 and I'll call you right back!
Check out www.truevisiontv.com/mylife for more details.]
BBC ONE: My Life (1hr)So if you are interested, check out their website, or call or text Tim on 07968 721299.
True Vision is a BAFTA award-winning production company renowned for making documentaries about important and often sensitive social issues. Our films have led to concrete political and social change regarding homelessness, unemployment, addiction and domestic violence - please visit www.truevisiontv.com for more details.
Eleven years ago our BBC documentary 'Eyes of a Child' compassionately told the story of children growing up on the edges of society. It caused a sensation and in the following weeks Tony Blair announced a raft of measures designed to eradicate poverty in the UK by 2020 - with an interim target of halving the number by 2010.
While some excellent work has been achieved with those closest to the poverty line, it is still estimated that 4 million children still live in poverty today. 'My Life' will provide 4-5 children living in households where the family struggle to make ends meet, (throughout the UK) the opportunity to present their world through their eyes, highlighting the things that affect them including housing, their local area, unemployment and access to education as well as their hopes and dreams despite living in tough circumstances.
It will be a powerful and important film which will give a voice to the children who are facing the toughest start in life compared to most. It will also help to ensure that child poverty remains at heart of future social policy in this historical year.
We are looking for children aged 8-12 (perhaps up to 14) throughout the UK who have plenty to say about their lives, their homes and their family. The filming would follow them over a couple of months (in short sensible bursts of filming that best tell their story) so that we can present a narrative for each which the audience can really engage with. Parents and siblings may well be involved but the vast majority of filming would focus on one or two of the children.
Given the nature of this documentary, we have a child protection policy which has been approved by the BBC for this project. All staff involved have been CRB-checked, have signed up to a strict protocol and solid experience working with children and families. At all times, whether gathering research in an informal capacity through to filming with a child, their safety and wellbeing is paramount
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Firstly I'd like to say that we are acutely aware of how difficult is to find contributors willing to discuss some very personal difficulties, furthermore ones that they may not be proud of - but I can honestly say that our previous contributors have all been happy with the final films, because they take a long time to make allowing a strong level of trust to develop. I also accept that not everything needs to be out in the public domain, so certain details can be withheld and we also show the film to contributors for fairness and accuracy prior to broadcast.
Recently there have been several documentaries made regarding social imbalances - perhaps most notably 'How the Other Half Live' - although the programme fulfils a purpose, I have to admit some personal dissatisfaction about the format used. We are perhaps slightly old-school and rather than have a life-swap scenario or celeb come in and view life through their experiences, our intention is to give the microphone to the kids and hear their voice, their thoughts and witness their lives - ultimately achieving a more 'real' picture of what life is like.
The film is meant to be a statement on Child Poverty/Social Deprivation - I cannot hide from this, or find contributors who are unaware of this - but I suppose my approach to potential contributors is to target the specifics underneath these banners, ie housing, education, family life, health, aspirations etc. Hopefully it won't be all doom and gloom though, and I'd like it to be a process that the kids enjoy, and can feel a strong sense of achievement & satisfaction from.
Finally I also wish to acknowledge that there is good work being done to alleviate social problems, I would say that there has been a lot of investment to improve certain parts of the country and perhaps the timing of this film will be important as expected cutbacks will hinder ongoing progress.