Don't look there, look here!

The Thick of It was set in a fictional government department: Department of Social Affairs and Citizenship, or DoSAC. But when I think about our real government, there's no other department I can imagine that would be quite as sitcom-worthy as the DWP.

There are certainly some very clever people in the department. Yesterday's death data was confusing to all who read it. Even very clever professional number crunchers couldn't really get to the bottom of it because the data was so badly presented. This was almost certainly deliberate: The DWP didn't answer what was asked of them, and dumped a load of data that would confuse people who tried to use the data to answer the simple question "how many people are dying after being found fit for work?"

Anyone can release some data while withholding the answer to a question, but the press and public will generally look at the data and find the answer for themselves. To release a bunch of data that's on-topic, but still means that very clever people can't get the answers they're looking for takes Bond-villain levels of evil genius. You have to wonder why someone who can so cleverly pretend to be transparent by releasing opaque data is working in a public sector job, and not using their evil genius skills to make themselves a billionaire.

But then there's the spokespeople who are so bad at sleight of hand that they remind you of a 4 year old trying to do a magic trick by saying "now, if you'll just look out of the window for a moment while I sort this.... OK, you can look back now."

The DWP spokesperson told the BBC for an article:

"The mortality rate for people who have died while claiming an out-of-work benefit has fallen over a 10-year period. This is in line with the mortality rate for the general working-age population.

"The government continues to support millions of people on benefits with an £80bn working-age welfare safety net in place."

None of the three sentences have anything to do with the question asked.

It was either a pathetic attempt at a misdirect ("never mind the terminally ill people we found fit for work. Look! Less people are dying whilst claiming benefits!") or they genuinely didn't understand the question and are akin to a GCSE English student rambling about Charlie and the Chocolate Factory when the exam question asked them about Romeo and Juliet.

You can just imagine a Malcolm Tucker type figure in the DWP yesterday, can't you? "We're fucking fucked. The fucking Information Commissioner's Office have fucking ordered us to release this fucking data. I'll tell you what; we'll make it as confusing as fuck and then we'll distract the fucking press with the press release. What parts of the data look good? Less scroungers are dying than a decade ago? Well fucking put that in the fucking press release. It doesn't fucking matter that it's got fuck all to do with the sick cunts dropping dead after we've stopped their benefits. And throw in a fucking brag about how many billions we waste on the scroungers at the end of it."

Either that or their spokesperson is as lacking in smarts as Terri Coverley which is why they were recruited because they would just innocently talk about something completely off topic because they understood the data even less than the press and public.

Poverty Porn is all the rage right now. Not just Benefits Street on C4. Just this week on five they had a "benefits night" with such classy shows as Big Benefits Wedding and 12 years old and on Benefits. Pointing and laughing at poor people is the hot TV trend. But I wanna see inside the DWP. I want to see inside the department that comes out with such ridiculously off-topic press statements. I want to gawp with wonder at the thinking behind sending a spokesperson out to insult the public's intelligence by hoping we won't notice that what they've said is unrelated to the subject at hand. In The Thick of It DoSAC tried to obfuscate around their role in the death of the fictional Phil Tickell. Unfortunately the DWP are trying to downplay their role in potentially thousands of real human beings dying penniless. If it wasn't such a tragic situation, I could very much enjoy an evening watching a fly-on-the-wall show set in the DWP press office as they scramble to say to the press "don't look at that, look at this!"

Fit For Death

The government have finally released the figures relating to the thousands of people who've died after being found 'fit for work'. This, of course, is in the same week that Iain Duncan Smith said that he wants to kick even more disabled people off ESA. (Not enough people dying penniless?)

As for very ill people being found fit for work, I couldn't help but notice that the government were kind-of telling the story through their (now withdrawn) case study leaflets.

Welfare Weekly unearthed the tale of a fictional ESA claimant called Zac.

Photo credit: DWP via Welfare Weekly

We get it. He's on ESA and he's ill enough to require hospital care.

Later in the week The Guardian found the same stock photo man in a different leaflet; this one promoting JSA sanctions.

Photo credit: DWP via Guardian

So I guess the story the DWP is trying to tell is that Zac originally claimed ESA, but then he was found fit for work and turfed onto JSA? Presumably his illness was why he didn't participate in Mandatory Work Activity or apply for a job.

Given the extremely high number of people who've died after being found fit for work - and the fact that the DWP like to make case study leaflets for "illustrative purposes only" - I'm guessing that somewhere in the DWP office there's another leaflet featuring Zac to explain what happens to ill people when they're found fit for work. And I'm assuming it looks a lot like this:

Photo credit: Template and Zac's photo by DWP, text by me

Of course; they don't need the fictional Zac to tell the story of what happens when they could hand out leaflets telling the real story of people who died fit for work. Like Moira Drury or Linda Wootton.

DWP employees: aspiring Harold Shipmans! pic.twitter.com/naqAgZNcRt

— Sheila Scoular (@sheilascoular) August 27, 2015

Four things from the Conservative Party Conference #cpc14

1) Housing Benefit for 18-21 year olds

In general students are ineligible for housing benefit, but many disabled students are. Which considering that most non-disabled students are able to take a part-time job, but most disabled students aren't it's rather sensible. Because of my impaired mobility I certainly could never have done the bar work or waitressing that my classmates all did. This is a way of levelling the playing field and allowing disabled people to study like their non-disabled peers.

Cuts to Disabled Students' Allowance were announced earlier in the year, though they've recently been postponed.

But now the Tories are planning an extra cut which will hit young people if they win the next election: they're going to prevent 18-21 year olds from claiming housing benefit. Many young people are going to end up homeless; both disabled and non-disabled; and it's going to be horrific. But it's going to have an extra impact on disabled people in that it's going to be yet another barrier in accessing an education that won't hit non-disabled people in quite the same way.

2) Freeze on working age benefits for 2 years

In his speech; Osborne announced that if the Tories win next year, he'll freeze working age benefits for 2 years. He lied outright when he told the assembled crowd and adoring media that this wouldn't apply to disability benefits. Dr Campbell explained on her blog how it definitely will be hitting ESA claimants. Please spread her post far and wide for people who haven't read the fine print of Osborne's announcement and took him at his word when he said it wouldn't apply to "disability benefits".

3) Benefits cards instead of cash

Because IDS doesn't realise that Shameless was a piece of fiction, he's going to be trialling paying benefits by pre-paid cards instead of cash so that people can only spend them on items he deems acceptable; and at stores that have negotiated deals with the government.

So if you live in the village where I grew up, can't use the train station or the buses because they're not accessible, and you don't have a car: You're fucked. Because the chances that the one family-run tiny village shop have got in on the government scheme are slim.

There's a host of other problems too. Addiction isn't the only criteria you'd get put onto the cards for. Debt is another one. Scope estimate that being disabled costs you on average an extra £550 a month. When you've got those extra costs mounting it's very easy to rack up debt.

What happens when you then need to buy a piece of equipment like a walking stick or a chopping board adapted for one-handed use from a company that's not signed up to the government benefit card scheme and you don't have any cash?

What about the 58 year old woman who's paid her National Insurance premiums for 40 years? She's now developed cancer and had to claim ESA while undergoing treatment. Because being ill is expensive she ran up some debt during treatment and as such was shifted from cash payments to a pre-paid card. She's just been given that all clear by her doctor; but it'll be at least a month before the effects of the treatment have worn off enough for her to be well enough to go back to work. Should she really not be allowed to buy a bottle of champagne the day she gets her all clear? After 40 years of paying her NI contributions?

It's very easy for people with mental health problems to get into financial difficulty when they're especially unwell. I know a lot of people end up with some quite large debts. For me, personally, the most effective antidepressant is TV. It's easy to immerse yourself in a fictional world to forget - just temporarily - how terrible real life is. I spent much of Monday upset about how isolated and alone I am. Wanna know how I distracted myself from the thoughts that my life really isn't worth living? I watched TV.

So you're ill, you're in debt, you've been given a card and are only allowed to spend money on pre-approved items from pre-approved stores. Your TV breaks and you need to repair or replace it for the sake of your sanity; to give your brain some respite from how miserable your life is. You're not allowed to buy a TV because TVs aren't on the list of things you're allowed to have. Are you supposed to just wallow in your depression until you finally do end up causing yourself serious harm?

Or you're so physically impaired that you're unable to cook. Your council won't give you a care package because their budget's been cut by central government. The only way you can get some food is to order a takeaway. You've got yourself into debt because buying takeaway every day is expensive, but you've got no choice. You get transferred from cash payments to the cards because of your debt and takeaways are a prohibited item. What are you supposed to eat then?

Or a card-holder in the situation that I'm in now where they need to buy a new mattress but the only things they're allowed to buy with their card are food, toiletries and clothes? Or if they are allowed to buy a mattress, but only from a supplier that's got a deal with the DWP. And that supplier won't remove old mattresses for disposal and they can't get rid of a mattress themselves because they're too physically impaired?

Then there are people with addictions. People who aren't going to stop buying drugs or alcohol because of a switch from cash to pre-paid cards because they are addicted. Instead they'll sell their £30 card for £15 of cash. Or resort to crime to meet their physical need for the substance they're addicted to.

4) Acceleration of Universal Credit rollout

On Monday IDS announced that Universal Credit will be rolled out to all JobCentres from early next year. They say this is because of the "success of the policy so far". Such a "success" that they keep lowering the target... And still missing it. For now it'll only be for single people claiming JSA. But with an accelerated timetable it won't be long before people reporting a change of circumstances can kiss their Severe Disability Premium goodbye, and the rest of us will watch it gradually fade away.

And a bonus piece of news that's not from the conference but got published this weekend

The DWP don't collect information on people who've died as a result of having their income stopped. Read the article from the Disability News Service who submitted the FoI request.

Guest post: Spoon overdrafts and the #WCA

This is a post by @MargoJMilne and originally appeared here on Tuesday 12th June.

It's difficult. I'd love to blog more. I'd love to do so many other things more too! Go out with friends, go shopping, go on holiday, keep on with my voluntary work, hold down a job...



But I'm a spoonie. I'm dreadfully, cripplingly fatigued because of long-term illness - in my case multiple sclerosis. And not only am I short on energy in the first place, but it takes me ages to recover after doing anything.

This weekend is an example. My beautiful, much loved cat Bing died on Friday. It was very, very stressful. Then on Sunday I drove to Oxford for lunch. Before I took ill, I wouldn't have thought twice about driving 60 miles each way for lunch. Now, it's an expedition of Amazonian proportions.

Today is Tuesday. I've not been out of my PJs since Sunday night. I really need to go into town to the bank, but my body's having none of it. It is, in fact, my spoon overdraft that's stopping me dealing with my financial one until I've got that blasted spoon level back up again.



And that's just one of the many problems with the Work Capability Assessment, which decides whether - and at what rate - people should get Employment and Support Allowance (ESA). It asks nothing at all about fatigue. It asks whether you can do a task once, but not whether you can do it repeatedly. It doesn't ask how your ability to work is affected by stress. ("Sorry, Mr. Employer, I can't come in this week. I'm tired cos my cat died.")

It's no wonder that so many people and organisations, including GPs, have denounced the WCA as inadequate. Staff members of ATOS, the company which carries out the assessments, have expressed concerns that not enough time is allowed for each appointment, for what are often complex cases with multiple comorbidities.

Karen Sherlock had multiple comorbidities - basically a lot of bad shit going on - but in her WCA she was put into the "work-related activity" group. That means they thought she'd be able to do some work, eventually.

Well, she couldn't. After a year's frantic, terrified gathering of evidence, Karen's appeal was successful, and she was placed in the support group.

And this week, two weeks after that decision, she died.

Wouldn't it be a wonderful memorial to Karen if this bluntest of blunt instruments were to be consigned to the history books forever? Let's continue to do all we can, for Karen and its other victims.

32 deaths a week.

I haven't been able to write here for a while. After the Welfare Reform Bill came into law it has all felt a bit pointless. I felt helpless, that all was lost.

Whether or not that is the case remains to be seen, but I've been prompted back into action after seeing this story: 32 die a week after failing test for new incapacity benefit.

32 people every week.

We've used the Freedom of Information Act to discover that, between January and August last year, 1,100 claimants died after they were put in the "work-related activity group".

This group - which accounted for 21% of all claimants at the last count - get a lower rate of benefit for one year and are expected to go out and find work. [...]

We don't know how many people died after being found "fit to work", the third group, as that information was "not available".

But we have also found that 1,600 people died before their assessment had been completed.

Go and read the whole thing, and kick up a fuss, put this to the top of everybody's agenda. It can't go on.