(Content warning: Mentions of domestic abuse and suicide)
During his Tory party conference speech last week, Rishi Sunak, while justifying slashing Universal Credit, asked his audience “is the answer to their hopes and dreams just to increase their benefits?”
The thing is, for many people; the answer is a simple “yes;” an increase in benefits could be an answer to their hopes and dreams.
* If a parent’s dream is for their kids to have a better life than them, and increased benefits mean they’ll be able to work only one job rather than the three they have now, giving them time to help their children with homework, which will enable their children to achieve more later in life: Yes, increased benefits can answer their hopes and dreams.
* If a terminally ill person’s dream is to go on an exciting adventure before they die: Yes, increasing their benefits can be the answer to their hopes and dreams.
* If a person with a mobility impairment dreams of a really good wheelchair that’ll change their life, but the NHS won’t prescribe what they need and they’re not popular enough to crowdfund it: Yes, increasing their benefits can answer their hopes and dreams.
* If a disabled person wants to move into a more accessible property, which will dramatically improve their health, but they can’t find one within the local housing allowance budget: Yes, increasing their benefits can answer their hopes and dreams.
* If a disabled person was saving up for something special, but they blew their savings on the extra costs of being disabled/shielding in a pandemic: Yes, increasing their benefits can answer their hopes and dreams.
PIP is supposed to cover the extra costs of being disabled, but despite the fact that so many of us saw our extra costs soar during the pandemic - from having to have everything delivered costing more than being able to go to the shops while shielding, to having to turn to more expensive things like robot vacuums and having to get takeaway every day when social care was withdrawn - we got no extra PIP payments to cover those extra costs. I calculated that my extra costs related to shielding from March 2020 to March 2021 came to £5,000. I won’t say I could “afford” that, because it’s not true; but I did have access to that amount thanks to family, while not all disabled people did. At least one disabled person starved to death during the first lockdown because he couldn’t access food while many other disabled people will have gone cold, hungry, or without connectivity due to not being able to afford phone credit because their extra costs were not met. There were no campaigns to get a one-off payment to PIP claimants to cover our pandemic extra costs, because no political party actually cares enough to fight for us; and the major disability charities aren’t any better, because they didn’t demand that PIP meet our pandemic-related extra costs either.
And if you have more than £16k in the bank, you’re not eligible for any income based benefits, you can only claim £74.70/£114.10 weekly contributions based ESA (as long as you’ve been paying your National Insurance contributions in the last couple of years), plus PIP. I’ve a good friend who got an inheritance a month before the pandemic. Not huge, but enough to buy a crap house in some of the most deprived areas of the north. But her income based benefits were cut because she did the right thing and told the DWP she’d gotten the inheritance, so during the pandemic she’s had to live off that inheritance because she was paying £107 rent a week out of £114 ESA; leaving her with £7 a week to live off, plus PIP to cover some of her extra costs of being disabled. Obviously £7 a week for all bills is not survivable, so she’s had to dip into the inheritance; and now it looks like she’ll be renting for the rest of her life between the inheritance she blew on surviving while shielding, and the soar in house prices caused by the stamp duty cut. Her only hope to buy a crap house in a deprived area in the north now is if there’s a housing crash this winter.
Most political parties at various points in time bang on and on about how the system should look after those who’ve ‘done the right thing’ and worked hard and paid their National Insurance. But they don’t at all. Having £7 a week to live on after you’ve paid your rent is not “looked after”. Those who’ve paid their NI but aren’t eligible for income based benefits because they’ve got a partner in work, or got more than £16k from an inheritance or old savings from when they were fit for work, are treated like shit. And because of that, the benefits system will pay more in the end. My friend won’t be able to buy a house now, so she’ll deplete the small inheritance, and then will soon be back on income based benefits again and the state will need to pay her rent again. If contributions based benefits were fair, she wouldn’t have blown out her inheritance while shielding, she’d be able to buy a cheap house once she’s had her third jab and finished shielding, and the state would never need to help her with rent ever again.
She - like claimants of all legacy benefits like JobSeekers Allowance, Carer’s Allowance, and all types of ESA (both contributions and income based) - didn’t even get the extra £20 a week that UC claimants got. When you’re left with £7 a week after paying rent, that extra £20 would triple the amount available to spend before having to buy food out of the money she was hoping to buy a future with. The #20MoreForAll campaign was pretty pitiful to be honest because it had no mainstream support; the main political parties barely made a peep - Labour just had the very occasional tweet from the Shadow Work & Pensions Secretary - and the charities that are supposed to represent us barely made a fuss either. I suppose at least they did more for that than they did for trying to get a one-off PIP payment to cover our pandemic extra costs; with the amount of effort there being absolute zero, they’ve never mentioned it at all.
(Friend consented to being written about anonymously)
* If a parent is worried about their children being at risk of getting involved in a gang, and dreams of moving to a new city to give their kids a fresh start, but they can’t afford a moving van, a deposit on a new private rented flat, or even to pass the financial check landlords carry out: Yes, increasing their benefits can answer their hopes and dreams.
* If a person with limited mobility simply dreams of surviving this winter without dying of hypothermia, and wishes they could afford to put the heating on: Yes, increasing their benefits can answer their hopes and dreams.
Disabled people born after 26th September 1955 aren’t eligible for the non-means tested Winter Fuel Payments and despite the fact that fuel bills are higher than ever, disabled people are having to spend more time at home than ever before because many of us are still at least semi-shielding, and most importantly; many of us can’t move around to keep warm like non-disabled people who can do star jumps to warm up: There’s no campaign to introduce WFPs for disabled people in this most expensive winter ever. Again, neither politicians, nor charities that supposedly represent us, care about us going cold this winter. The WFP ranges from £100-£300 depending on age and circumstances. I’d say that £150 for those getting the low rate mobility component of DLA/PIP (who have some limitations with their ability to move around), and £300 for those getting the high rate mobility component of DLA/PIP (who have severe limitations with their ability to move around), would be suitable rates. But no-one cares if we fucking freeze, especially not those supposed to be representing us.
* If a person who recently became disabled can no longer do their old job, and they need money to pay the course fees to retrain do something different: Yes, increasing their benefits can answer their hopes and dreams.
While you can get some qualifications funded by the JobCentre if you meet certain conditions; there will always be people who want/need to train on a course that isn’t funded, or they don’t meet the criteria for funding.
* If a homeowner is off work sick long term with Long Covid, and they dream of keeping the family home, perhaps the home where their children grew up, maybe the house where their spouse died, but they can’t afford the mortgage on ESA or Universal Credit: Yes, increasing their benefits can answer their hopes and dreams.
* If someone permanently too ill to work dreams of being a homeowner: Yes, increasing their benefits can answer their hopes and dreams.
You can claim housing benefits to pay your landlord’s mortgage, but not your own. The only help for homeowners with housing costs is Support for Mortgage Interest; and even that’s a loan nowadays. So you’d have to find the money for your mortgage, and all the other expenses in life, out of your £74.70/£114.10 weekly contributions based ESA, or £324.84-£668.47 monthly Universal Credit. (Some people are still getting income based ESA, although you haven't been able to put in a new claim for ibESA since long before SARS-CoV2 made the jump to humans, so that won't apply to anyone newly claiming benefits due to long covid.)
* If a disabled person on income based benefits dreams of living with their partner, but can’t afford it because their benefits will be stopped completely leaving them wholly dependent on their other half: Yes, increasing their benefits can answer their hopes and dreams.
* If a disabled person dreams of leaving their abusive partner, then an increase to benefits that are paid directly to them - specifically PIP or contributions-based ESA, as distinct from Universal Credit which will be paid to the head of the household - could enable them to afford transport and a temporary place to stay in order to be able to leave; answering their hopes and dreams.
Disabled people are nearly three times as likely to experience domestic abuse as non-disabled people so needing to save up money that comes to you personally in order to leave is not a hypothetical risk for thousands. It's also why many disabled people daren't move in with a partner they'd be wholly dependent on because it would put them at such high risk of financial abuse, and potentially other kinds too. You never know what the wonderful, kind, gentle person you love right now will turn into when you're completely dependent on them just to buy tampons.
* If a disabled person simply dreams of not having to count every penny, of being able to spontaneously buy a new dress, of being able to get takeaway now and then, of being able to put the heating on more than 3 hours a day: Yes, increasing their benefits can answer their dreams.
* If a new computer could make someone employable, if they’re only well enough to work from home and a new PC could completely change their life, but they just can’t afford one: Yes, increasing their benefits can answer their hopes and dreams.
I don’t know if you noticed, but in several of these examples - the person who needs a new wheelchair, the person who needs a more accessible home, the person who needs to retrain, and the person who needs a new computer - an increase in benefits would ultimately make them more employable. The government thinks slashing benefits is the answer to getting disabled people back to work; but in reality the opposite is true. If you need a wheelchair to physically get yourself to work, but you can’t afford one, the NHS won’t issue a suitable one, you’re not eligible for Motability because you got turned down for high rate mobility PIP, and you’re not popular enough to crowdfund one: You literally cannot physically go into a job interview to try and get hired.
First Labour, then Tories and Lib Dems, then Tories on their own, then Tories and the DUP, and most recently Tories on their own again, have spent the last 13 years cutting disabled people’s benefits to try to get seriously ill and severely disabled people to get off their "lazy" sick and disabled arses, and into work. Never mind the fact that DLA was not an out of work benefit and plenty of claimants needed it to stay in employment; they still created PIP to try and cut the case load by 20%, spouting utter bollocks about getting disabled people into work.
But when you cut someone’s benefits, you drive them further from the workplace. If someone has a job that can’t be done from home, but their PIP is stopped so the Motability scheme takes back their leased wheelchair: Suddenly they cannot go into work, maybe cannot even get out of bed. They’ll at the very least need to take a sabbatical from work until they get a new wheelchair, they may even lose their job entirely.
You also drive them further from the workplace because poverty damages health, and we’re talking about people who are already sick. If someone has cancer but is hoping that claiming benefits is a short term thing because they’re hoping they’ll recover quickly; until they discover how little they’ll have to live on. You cannot recover from a serious illness like cancer if you’re malnourished from poor quality food, and borderline hypothermic because you can’t move much and you can’t afford to put the heat on, while the stress of poverty can also affect physical healing. A cannabis prescription may help with many facets of cancer with THC being an antiemetic, a painkiller, and an appetite stimulant, but cannabis prescriptions are pretty much only available privately; and you definitely won’t be able to afford private healthcare on £74.70 a week ESA (the amount you’ll get if you’re expected to be able to return to work in the not too distant future). Such claimants would have the chance to recover quicker and get back to work quicker if their benefits were enough that they could eat well, keep warm in winter and cool in summer, avoid having their physical healing slowed by the psychological stress caused by poverty, and afford a bit of private healthcare; whether a physio to help them get movement back after an op, or, yes; a doctor who issues private prescriptions for medical marijuana.
The stress of poverty affects even those who were the most mentally sound previously. So if you’re claiming benefits for a mental health condition, the chances you’ll be able to get off benefits is slim. But if our benefits system lifted ill and impaired people out of poverty, it would give people a real shot at recovering from a mental illness, instead of our social security system making people sicker. Especially if people could afford to pay for mental healthcare in a timely manner rather than waiting at least months, commonly years, often for the wrong therapy on the NHS.
If you just yank the social security rug out from under the feet of people claiming benefits due to severe mental illness, obviously they’re not well enough just get a job, so they end up dying like Errol Graham and Mark Wood who both starved to death because they couldn’t afford food, or they’ll die by suicide like Philippa Day, Paul Reekie, and far too many others to list. Reekie died only a month after Iain Duncan Smith succeeded Yvette Cooper as Work & Pensions secretary, so his death was as a result of the benefit cuts instituted by the last Labour government; before the Tories had the chance to make the system even worse. It's worth noting that in Australia, during the pandemic when social security payments temporarily rose and lifted people briefly out of poverty, suicides went down.
The government created the non-means tested furlough scheme to keep people's finances sound while they weren't in work, because they know full well that plunging people into poverty drives them further away from work by damaging their mental and physical health, and leaves them unable to afford the essentials to get back into work like a computer and smart clothing. But they don't apply the same logic to sick and disabled people. Somehow we're a magic mirror image of the non-disableds, and forcing us deeper into poverty will supernaturally drive us closer to work. Even though the list of DWP-related deaths tells a different story.
Yet despite all these obvious examples of how increased benefits could not only answer our hopes and dreams (and in some cases save our lives), but also achieve the government’s goal of making us more employable; Thérèse Coffey said at the Tory conference that she wants to cut even more people’s benefits “to get us into work” when, of course, all it’ll do is make people iller - therefore further from work, less able to afford to get healthy, and less able to buy the tools they need to find work like wheelchairs and computers - and will ultimately lead to even more preventable deaths at the hands of the DWP.
The main reason for planning more cuts, of course, is just because the Tories love levelling down, despite all the "levelling up" bollocks that riddled Johnson's conference speech. At the exact same time that the Universal Credit cut went into effect, plunging families into poverty, increasing hunger and suffering across the country; Thérèse Coffey was making sure everybody knew that she was loving it; she was having the time of her life.
Campaigning against the government's distressing war on disabled benefit claimants. All posts represent the opinions of their respective authors and not WtB as a whole.
Showing posts with label esa. Show all posts
Showing posts with label esa. Show all posts
Wednesday, 13 October 2021
Friday, 28 August 2015
Fit For Death
The government have finally released the figures relating to the thousands of people who've died after being found 'fit for work'. This, of course, is in the same week that Iain Duncan Smith said that he wants to kick even more disabled people off ESA. (Not enough people dying penniless?)
As for very ill people being found fit for work, I couldn't help but notice that the government were kind-of telling the story through their (now withdrawn) case study leaflets.
Welfare Weekly unearthed the tale of a fictional ESA claimant called Zac.
We get it. He's on ESA and he's ill enough to require hospital care.
Later in the week The Guardian found the same stock photo man in a different leaflet; this one promoting JSA sanctions.
So I guess the story the DWP is trying to tell is that Zac originally claimed ESA, but then he was found fit for work and turfed onto JSA? Presumably his illness was why he didn't participate in Mandatory Work Activity or apply for a job.
Given the extremely high number of people who've died after being found fit for work - and the fact that the DWP like to make case study leaflets for "illustrative purposes only" - I'm guessing that somewhere in the DWP office there's another leaflet featuring Zac to explain what happens to ill people when they're found fit for work. And I'm assuming it looks a lot like this:
Of course; they don't need the fictional Zac to tell the story of what happens when they could hand out leaflets telling the real story of people who died fit for work. Like Moira Drury or Linda Wootton.
As for very ill people being found fit for work, I couldn't help but notice that the government were kind-of telling the story through their (now withdrawn) case study leaflets.
Welfare Weekly unearthed the tale of a fictional ESA claimant called Zac.
Photo credit: DWP via Welfare Weekly
We get it. He's on ESA and he's ill enough to require hospital care.
Later in the week The Guardian found the same stock photo man in a different leaflet; this one promoting JSA sanctions.
Photo credit: DWP via Guardian
So I guess the story the DWP is trying to tell is that Zac originally claimed ESA, but then he was found fit for work and turfed onto JSA? Presumably his illness was why he didn't participate in Mandatory Work Activity or apply for a job.
Given the extremely high number of people who've died after being found fit for work - and the fact that the DWP like to make case study leaflets for "illustrative purposes only" - I'm guessing that somewhere in the DWP office there's another leaflet featuring Zac to explain what happens to ill people when they're found fit for work. And I'm assuming it looks a lot like this:
Photo credit: Template and Zac's photo by DWP, text by me
Of course; they don't need the fictional Zac to tell the story of what happens when they could hand out leaflets telling the real story of people who died fit for work. Like Moira Drury or Linda Wootton.
DWP employees: aspiring Harold Shipmans! pic.twitter.com/naqAgZNcRt
— Sheila Scoular (@sheilascoular) August 27, 2015Wednesday, 19 August 2015
Purposefully Illustrating What? #fakeDWPstories
Yesterday every major news outlet picked up Welfare Weekly's scoop that the DWP made up "case studies" about people that were happy with the sanctions system.
But one aspect that most outlets didn't report on, was that the leaflet in question - which Welfare Weekly had archived - specifically pertained to ESA sanctions. This leaflet was solely about selling the perks of sanctioning people who are too ill to work.
All sanctioning is cruel and should be stopped. But there is something especially sinister about sanctioning people who are too ill to work for not trying hard enough to get a job that they're not well enough to do anyway.
For those not in the know; Employment and Support Allowance is split into two groups: The Support Group for people who are not expected to ever be well enough to return to work, and the Work Related Activity Group (WRAG) for people who are unable to work right now, but might be well enough to work at some point in the future.
So the WRAG is comprised of people with cancer who are expected to make a full recovery eventually, but for now they're undergoing treatment. There'll be people who've had life-changing accidents who are still in rehabilitation. People who are waiting for surgery, such as a hip replacement, before they can return to work.
It's not surprising they couldn't get any genuine quotes, is it? "I was so busy going to radiotherapy every day that I didn't have time to write a CV. Getting sanctioned for a week made me realise the importance of having my CV up-to-date whereas before I'd been solely focussed on kicking cancer."
Or "My brain injury from my car accident has made me forgetful and I forgot I was supposed to be going to the JobCentre. Sanctioning saved me from worrying about whether I'd remember to go shopping because I didn't have any money to buy food anyway."
Given that the press found such a massive story about ESA and sanctions, it's a shame they didn't devote a paragraph in each article about how evil it is to be sanctioning people who are too ill to work. The DWP claimed the made up case studies were for “for illustrative purposes only”. It would have been nice to use the story to purposefully illustrate the barbaric treatment of WRAG claimants, while most journos just conflated WW's story with JobSeekers' Allowance.
But one aspect that most outlets didn't report on, was that the leaflet in question - which Welfare Weekly had archived - specifically pertained to ESA sanctions. This leaflet was solely about selling the perks of sanctioning people who are too ill to work.
All sanctioning is cruel and should be stopped. But there is something especially sinister about sanctioning people who are too ill to work for not trying hard enough to get a job that they're not well enough to do anyway.
For those not in the know; Employment and Support Allowance is split into two groups: The Support Group for people who are not expected to ever be well enough to return to work, and the Work Related Activity Group (WRAG) for people who are unable to work right now, but might be well enough to work at some point in the future.
So the WRAG is comprised of people with cancer who are expected to make a full recovery eventually, but for now they're undergoing treatment. There'll be people who've had life-changing accidents who are still in rehabilitation. People who are waiting for surgery, such as a hip replacement, before they can return to work.
It's not surprising they couldn't get any genuine quotes, is it? "I was so busy going to radiotherapy every day that I didn't have time to write a CV. Getting sanctioned for a week made me realise the importance of having my CV up-to-date whereas before I'd been solely focussed on kicking cancer."
Or "My brain injury from my car accident has made me forgetful and I forgot I was supposed to be going to the JobCentre. Sanctioning saved me from worrying about whether I'd remember to go shopping because I didn't have any money to buy food anyway."
Given that the press found such a massive story about ESA and sanctions, it's a shame they didn't devote a paragraph in each article about how evil it is to be sanctioning people who are too ill to work. The DWP claimed the made up case studies were for “for illustrative purposes only”. It would have been nice to use the story to purposefully illustrate the barbaric treatment of WRAG claimants, while most journos just conflated WW's story with JobSeekers' Allowance.
Wednesday, 1 October 2014
Four things from the Conservative Party Conference #cpc14
1) Housing Benefit for 18-21 year olds
In general students are ineligible for housing benefit, but many disabled students are. Which considering that most non-disabled students are able to take a part-time job, but most disabled students aren't it's rather sensible. Because of my impaired mobility I certainly could never have done the bar work or waitressing that my classmates all did. This is a way of levelling the playing field and allowing disabled people to study like their non-disabled peers.
Cuts to Disabled Students' Allowance were announced earlier in the year, though they've recently been postponed.
But now the Tories are planning an extra cut which will hit young people if they win the next election: they're going to prevent 18-21 year olds from claiming housing benefit. Many young people are going to end up homeless; both disabled and non-disabled; and it's going to be horrific. But it's going to have an extra impact on disabled people in that it's going to be yet another barrier in accessing an education that won't hit non-disabled people in quite the same way.
2) Freeze on working age benefits for 2 years
In his speech; Osborne announced that if the Tories win next year, he'll freeze working age benefits for 2 years. He lied outright when he told the assembled crowd and adoring media that this wouldn't apply to disability benefits. Dr Campbell explained on her blog how it definitely will be hitting ESA claimants. Please spread her post far and wide for people who haven't read the fine print of Osborne's announcement and took him at his word when he said it wouldn't apply to "disability benefits".
3) Benefits cards instead of cash
Because IDS doesn't realise that Shameless was a piece of fiction, he's going to be trialling paying benefits by pre-paid cards instead of cash so that people can only spend them on items he deems acceptable; and at stores that have negotiated deals with the government.
So if you live in the village where I grew up, can't use the train station or the buses because they're not accessible, and you don't have a car: You're fucked. Because the chances that the one family-run tiny village shop have got in on the government scheme are slim.
There's a host of other problems too. Addiction isn't the only criteria you'd get put onto the cards for. Debt is another one. Scope estimate that being disabled costs you on average an extra £550 a month. When you've got those extra costs mounting it's very easy to rack up debt.
What happens when you then need to buy a piece of equipment like a walking stick or a chopping board adapted for one-handed use from a company that's not signed up to the government benefit card scheme and you don't have any cash?
What about the 58 year old woman who's paid her National Insurance premiums for 40 years? She's now developed cancer and had to claim ESA while undergoing treatment. Because being ill is expensive she ran up some debt during treatment and as such was shifted from cash payments to a pre-paid card. She's just been given that all clear by her doctor; but it'll be at least a month before the effects of the treatment have worn off enough for her to be well enough to go back to work. Should she really not be allowed to buy a bottle of champagne the day she gets her all clear? After 40 years of paying her NI contributions?
It's very easy for people with mental health problems to get into financial difficulty when they're especially unwell. I know a lot of people end up with some quite large debts. For me, personally, the most effective antidepressant is TV. It's easy to immerse yourself in a fictional world to forget - just temporarily - how terrible real life is. I spent much of Monday upset about how isolated and alone I am. Wanna know how I distracted myself from the thoughts that my life really isn't worth living? I watched TV.
So you're ill, you're in debt, you've been given a card and are only allowed to spend money on pre-approved items from pre-approved stores. Your TV breaks and you need to repair or replace it for the sake of your sanity; to give your brain some respite from how miserable your life is. You're not allowed to buy a TV because TVs aren't on the list of things you're allowed to have. Are you supposed to just wallow in your depression until you finally do end up causing yourself serious harm?
Or you're so physically impaired that you're unable to cook. Your council won't give you a care package because their budget's been cut by central government. The only way you can get some food is to order a takeaway. You've got yourself into debt because buying takeaway every day is expensive, but you've got no choice. You get transferred from cash payments to the cards because of your debt and takeaways are a prohibited item. What are you supposed to eat then?
Or a card-holder in the situation that I'm in now where they need to buy a new mattress but the only things they're allowed to buy with their card are food, toiletries and clothes? Or if they are allowed to buy a mattress, but only from a supplier that's got a deal with the DWP. And that supplier won't remove old mattresses for disposal and they can't get rid of a mattress themselves because they're too physically impaired?
Then there are people with addictions. People who aren't going to stop buying drugs or alcohol because of a switch from cash to pre-paid cards because they are addicted. Instead they'll sell their £30 card for £15 of cash. Or resort to crime to meet their physical need for the substance they're addicted to.
4) Acceleration of Universal Credit rollout
On Monday IDS announced that Universal Credit will be rolled out to all JobCentres from early next year. They say this is because of the "success of the policy so far". Such a "success" that they keep lowering the target... And still missing it. For now it'll only be for single people claiming JSA. But with an accelerated timetable it won't be long before people reporting a change of circumstances can kiss their Severe Disability Premium goodbye, and the rest of us will watch it gradually fade away.
And a bonus piece of news that's not from the conference but got published this weekend
The DWP don't collect information on people who've died as a result of having their income stopped. Read the article from the Disability News Service who submitted the FoI request.
In general students are ineligible for housing benefit, but many disabled students are. Which considering that most non-disabled students are able to take a part-time job, but most disabled students aren't it's rather sensible. Because of my impaired mobility I certainly could never have done the bar work or waitressing that my classmates all did. This is a way of levelling the playing field and allowing disabled people to study like their non-disabled peers.
Cuts to Disabled Students' Allowance were announced earlier in the year, though they've recently been postponed.
But now the Tories are planning an extra cut which will hit young people if they win the next election: they're going to prevent 18-21 year olds from claiming housing benefit. Many young people are going to end up homeless; both disabled and non-disabled; and it's going to be horrific. But it's going to have an extra impact on disabled people in that it's going to be yet another barrier in accessing an education that won't hit non-disabled people in quite the same way.
2) Freeze on working age benefits for 2 years
In his speech; Osborne announced that if the Tories win next year, he'll freeze working age benefits for 2 years. He lied outright when he told the assembled crowd and adoring media that this wouldn't apply to disability benefits. Dr Campbell explained on her blog how it definitely will be hitting ESA claimants. Please spread her post far and wide for people who haven't read the fine print of Osborne's announcement and took him at his word when he said it wouldn't apply to "disability benefits".
3) Benefits cards instead of cash
Because IDS doesn't realise that Shameless was a piece of fiction, he's going to be trialling paying benefits by pre-paid cards instead of cash so that people can only spend them on items he deems acceptable; and at stores that have negotiated deals with the government.
So if you live in the village where I grew up, can't use the train station or the buses because they're not accessible, and you don't have a car: You're fucked. Because the chances that the one family-run tiny village shop have got in on the government scheme are slim.
There's a host of other problems too. Addiction isn't the only criteria you'd get put onto the cards for. Debt is another one. Scope estimate that being disabled costs you on average an extra £550 a month. When you've got those extra costs mounting it's very easy to rack up debt.
What happens when you then need to buy a piece of equipment like a walking stick or a chopping board adapted for one-handed use from a company that's not signed up to the government benefit card scheme and you don't have any cash?
What about the 58 year old woman who's paid her National Insurance premiums for 40 years? She's now developed cancer and had to claim ESA while undergoing treatment. Because being ill is expensive she ran up some debt during treatment and as such was shifted from cash payments to a pre-paid card. She's just been given that all clear by her doctor; but it'll be at least a month before the effects of the treatment have worn off enough for her to be well enough to go back to work. Should she really not be allowed to buy a bottle of champagne the day she gets her all clear? After 40 years of paying her NI contributions?
It's very easy for people with mental health problems to get into financial difficulty when they're especially unwell. I know a lot of people end up with some quite large debts. For me, personally, the most effective antidepressant is TV. It's easy to immerse yourself in a fictional world to forget - just temporarily - how terrible real life is. I spent much of Monday upset about how isolated and alone I am. Wanna know how I distracted myself from the thoughts that my life really isn't worth living? I watched TV.
So you're ill, you're in debt, you've been given a card and are only allowed to spend money on pre-approved items from pre-approved stores. Your TV breaks and you need to repair or replace it for the sake of your sanity; to give your brain some respite from how miserable your life is. You're not allowed to buy a TV because TVs aren't on the list of things you're allowed to have. Are you supposed to just wallow in your depression until you finally do end up causing yourself serious harm?
Or you're so physically impaired that you're unable to cook. Your council won't give you a care package because their budget's been cut by central government. The only way you can get some food is to order a takeaway. You've got yourself into debt because buying takeaway every day is expensive, but you've got no choice. You get transferred from cash payments to the cards because of your debt and takeaways are a prohibited item. What are you supposed to eat then?
Or a card-holder in the situation that I'm in now where they need to buy a new mattress but the only things they're allowed to buy with their card are food, toiletries and clothes? Or if they are allowed to buy a mattress, but only from a supplier that's got a deal with the DWP. And that supplier won't remove old mattresses for disposal and they can't get rid of a mattress themselves because they're too physically impaired?
Then there are people with addictions. People who aren't going to stop buying drugs or alcohol because of a switch from cash to pre-paid cards because they are addicted. Instead they'll sell their £30 card for £15 of cash. Or resort to crime to meet their physical need for the substance they're addicted to.
4) Acceleration of Universal Credit rollout
On Monday IDS announced that Universal Credit will be rolled out to all JobCentres from early next year. They say this is because of the "success of the policy so far". Such a "success" that they keep lowering the target... And still missing it. For now it'll only be for single people claiming JSA. But with an accelerated timetable it won't be long before people reporting a change of circumstances can kiss their Severe Disability Premium goodbye, and the rest of us will watch it gradually fade away.
And a bonus piece of news that's not from the conference but got published this weekend
The DWP don't collect information on people who've died as a result of having their income stopped. Read the article from the Disability News Service who submitted the FoI request.
Monday, 17 March 2014
Fit for Work?
Citizen's Advice are currently in the middle of a nationwide campaign on ESA (Employment and Support Allowance). ESA is paid to people who are unable to work due to disability and frequently the decisions that have been made about who does and doesn't qualify have been wrong leading to stressful reconsiderations and appeals. Many people have died after wrongly being found fit for work. Others have committed suicide due to incorrect decisions and/or the stress of the process. Citizen's Advice's campaign is called Fit for Work because they hope that if implemented the changes they're calling for will help make ESA fit for work (i.e. fit for purpose).
The campaign is calling for:
They are doing this in a variety of ways but I wanted to blog about one of them
CABs generate evidence about problems we see. And they have thousand and thousands of pieces relating to ESA if the evidence submitted just by the bureau I volunteer at is anything to go by (I'm both an adviser and a social policy coordinator so most of the evidence we generate I see before it gets sent to Citizen's Advice head office.). Those pieces are great for facts. What when wrong. When did it go wrong. How did that affect the client? But they aren't so good at the more human side of it, how did it make them feel? How did it effect their health? What happened next, how long did it take to resolve and how did that affect the client? (mostly because in my experience at least we rarely find out the long term outcome)
Citizen's Advice are looking for as many people as possible to share their own stories of ESA in their own words. What it means to live the ESA process. Whether they claim it, they volunteer for a CAB and have helped clients claim it, they've supported friends or family through the process or whatever reason.
These stories are being gathered on their blog and through the #FitForWork hashtag on twitter. More stories are still needed and can be submitted here.
The campaign is calling for:
- The Department of Work and Pensions (DWP) should listen to evidence from the health and social care professionals who know you best.
- The medical evidence required to make your case should be provided free of charge.
- The companies running the work capability assessments should be held accountable for poor quality assessments or bad customer service.
- The DWP should continue to pay people ESA while a second opinion is given on their application.
They are doing this in a variety of ways but I wanted to blog about one of them
CABs generate evidence about problems we see. And they have thousand and thousands of pieces relating to ESA if the evidence submitted just by the bureau I volunteer at is anything to go by (I'm both an adviser and a social policy coordinator so most of the evidence we generate I see before it gets sent to Citizen's Advice head office.). Those pieces are great for facts. What when wrong. When did it go wrong. How did that affect the client? But they aren't so good at the more human side of it, how did it make them feel? How did it effect their health? What happened next, how long did it take to resolve and how did that affect the client? (mostly because in my experience at least we rarely find out the long term outcome)
Citizen's Advice are looking for as many people as possible to share their own stories of ESA in their own words. What it means to live the ESA process. Whether they claim it, they volunteer for a CAB and have helped clients claim it, they've supported friends or family through the process or whatever reason.
These stories are being gathered on their blog and through the #FitForWork hashtag on twitter. More stories are still needed and can be submitted here.
Tuesday, 4 March 2014
I just got a weird phone call...
Woman from my local Job Centre: We're just updating our notes. So what are your aims?
Me: I thought these kinds of questions were only for people in the Work Related Activity Group?
JC: No, we're asking people in the Support Group. It's because you're in the Support Group that we're doing this over the phone rather than asking you to come in in person.
Me: Well I don't have any aims. Given the state of my health, aspiring to do something would just be false hope.
JC: It says here that you're interested in stand up comedy...
Me: Yes, that's what I used to do before I became too ill to carry on.
JC: Was you like on TV? Or comedy clubs?
Me: I only got to do stand up for two and a half years before I became too ill to carry on. No-one makes it onto TV in only two and a half years.
JC: So, has your health deteriorated?
Me: Not really since my last Atos assessment in December 2012. I've gotten a couple of new diagnoses, but nothing significant.
JC: [slightly concerned] But you're OK though, right?
Me: Not really, no!
JC: OK. That's fine. If you ever come in here ask to see me, [name].
As Latentexistence says:
Edited to add: I should have mentioned that I didn't answer on the first go. During the 30 hours prior to this conversation, she'd tried to call 3 times while I was asleep.
Me: I thought these kinds of questions were only for people in the Work Related Activity Group?
JC: No, we're asking people in the Support Group. It's because you're in the Support Group that we're doing this over the phone rather than asking you to come in in person.
Me: Well I don't have any aims. Given the state of my health, aspiring to do something would just be false hope.
JC: It says here that you're interested in stand up comedy...
Me: Yes, that's what I used to do before I became too ill to carry on.
JC: Was you like on TV? Or comedy clubs?
Me: I only got to do stand up for two and a half years before I became too ill to carry on. No-one makes it onto TV in only two and a half years.
JC: So, has your health deteriorated?
Me: Not really since my last Atos assessment in December 2012. I've gotten a couple of new diagnoses, but nothing significant.
JC: [slightly concerned] But you're OK though, right?
Me: Not really, no!
JC: OK. That's fine. If you ever come in here ask to see me, [name].
As Latentexistence says:
@lisybabe Well that's worrying. They could easily make things much worse if they call some people.
— Tentacle Sixteen (@latentexistence) March 4, 2014Edited to add: I should have mentioned that I didn't answer on the first go. During the 30 hours prior to this conversation, she'd tried to call 3 times while I was asleep.
Wednesday, 5 February 2014
#BigBenefitsRow
On Monday night, Peter Stringfellow pointed to Mik, MJ and me on live TV and said:
Apparently what we didn't deserve was a place at the grown up table to discuss the issues that affect us. Sue has blogged about how she was pulled from the line up with 2 hours notice. meaning there were no benefit-claiming disabled experts to talk about the cuts. People have pointed out that White Dee claims ESA for depression; so there was at least one disabled person on the panel. But firstly, we don't know if she identifiess as "disabled". It's possible she doesn't because so many people view being disabled as such an horrific and revolting thing. Secondly she claims benefits; but she's not an expert on them. People like Sue and me are. We can tell you the fraud rates for disability benefits off the top of our heads. We can gives you names of people who died from their conditions while supposedly "fit for work".
(OK, I know I'd never get invited to be on the panel if there was literally anybody else available. Media types only call me when their first choice is unavailable. I know I'm not cool or popular or particularly liked among the prominent left. And that's OK; I've never been popular and I'm used to it.)
But given that disabled people are more hit by the cuts than any other group of people; they shouldn't have just kept Sue and Dee in the line-up: They should have had additional disabled people up there too. There's a saying among disability rights activists that's been around as long as I can remember; it's possible the statement is older than I am. That saying is "nothing about us without us". And Monday night's debate was almost exclusively about us, but apart from Dee (and Mik managing to get about 3 seconds of soundbite out) it was definitely without us.
But I want to go back to Stringfellow's comments about what we "deserve" and what we "get".
When he said it; I laughed. Loudly. But then I always laugh loudly. My laugh carries for miles; just ask most of this country's comedians. I laughed so loudly that it was my only verbal ejaculation of the evening that was picked up by the microphones. (And I really put effort into heckling in an attempt to be heard; the laugh was just my normal laugh.)
I laughed because the support we get is being cut to the bone. Employment and Support Allowance cuts, Disability Living Allowance cuts, council tax benefit cuts, the bedroom tax, severe disability premium cuts, social care cuts, NHS cuts. Do we deserve that?
What we do currently get - and what we get an increase in every time papers run front pages calling us "scroungers" - is hate.
Disabled people get called "scrounging cunt" in the street for going out while visibly disabled. WtB's Pippa got followed home by someone shouting "fucking DLA stick.". I've been told that I should have been killed at birth to save the taxpayer money.
What we get is told that we're not allowed nice things. When I first got an iPhone I sustained abuse for it. The person abusing me didn't care that it was a Christmas present to replace my broken CrapBerry; disabled people are simply not allowed to own nice things. The media has an obsession with benefit claimants and the size of our TVs. Last autumn I had a TV crew in my living room. Before I was willing to start talking to camera I made them show me the shot so I was sure my telly couldn't be seen. My TV is shit: You can't have the aerial cable and an HDMI cable plugged in at the same time or they cause each other interference. But you can't see the fault from just looking at it (unless you're trying to watch a DVD with the aerial cable plugged in), so if my telly had been shown during my 4thought; the next day the Daily Mail's front page would've said "outrage as benefit claimant owns flat screen TV." Poor people owning stuff really seems to get under people's skin; no matter the circumstances in which they acquired said things.
There have even been cases of people who don't claim a penny in benefits getting abuse for being "scroungers" for merely looking disabled.
Do we deserve that?
Do we deserve to never be able to afford holidays? To only be able to afford Primark clothes? To not be able to upgrade to a TV without a fault? To know that this financial struggle is going to last your whole life because you're an "incurable"?
Katie Hopkins kept claiming that she was there to represent "hard working Britain". What about the 58 year old with cancer who has been working hard and paying National Insurance premiums for 40 years, but has just been refused ESA? That is the whole point of National Insurance. Because disabled people weren't allowed to be part of the debate; no-one pointed out that the system is there precisely to protect hard working Britons.
Hopkins also brought up the number of people being found "fit for work": Because there were no experts on disability benefits on the panel; no-one pointed out that that includes fatally ill people like Larry Newman or Cecilia Burns. I tried heckling "that includes terminally ill people!" But when I watched the show back, I realised that I hadn't been picked up by any of the mics around the room.
She then went on to claim that chancers are pulling out of the ESA process before being assessed by Atos because they're frightened of being caught out. There are all sorts of reasons people stop their claims, including dying. Again I tried heckling "that includes people who've died!" But again went unheard by the audience at home.
Coming from a stand up background, I hate hecklers. I hated having to heckle. But seeing as the producers wouldn't let any disabled people up on the stage to rebut these distorted claims, I was left with no choice but to try shouting.
Before the cameras started rolling, the floor manager told us that if we had something to say; we should say it. She said she didn't want people to leave feeling that they'd not had their voices heard. The lack of disabled people's representation up on that stage meant that voices like mine weren't heard. With the exception of Dee, Jack Monroe and Annabel Giles; the voices we heard from were people who have no idea how miserable life on benefits is, and how cruel people can be to those perceived as "scroungers". Yes, a couple of other people said that they know people on benefits and are aware of their struggles; but trust me: Unless you've lived this, you really don't know just how horrific it feels.
Benefits Street might have made this country obsessed with talking about benefits. It might have made benefits issues a guaranteed ratings winner. But unless you let the people affected by these issues use their own voices in these debates; you've just got people pointlessly arguing for an hour. 'Nothing about us without us' my backside.
I'm looking at people over there who obviously deserve everything they can get.
Apparently what we didn't deserve was a place at the grown up table to discuss the issues that affect us. Sue has blogged about how she was pulled from the line up with 2 hours notice. meaning there were no benefit-claiming disabled experts to talk about the cuts. People have pointed out that White Dee claims ESA for depression; so there was at least one disabled person on the panel. But firstly, we don't know if she identifiess as "disabled". It's possible she doesn't because so many people view being disabled as such an horrific and revolting thing. Secondly she claims benefits; but she's not an expert on them. People like Sue and me are. We can tell you the fraud rates for disability benefits off the top of our heads. We can gives you names of people who died from their conditions while supposedly "fit for work".
(OK, I know I'd never get invited to be on the panel if there was literally anybody else available. Media types only call me when their first choice is unavailable. I know I'm not cool or popular or particularly liked among the prominent left. And that's OK; I've never been popular and I'm used to it.)
But given that disabled people are more hit by the cuts than any other group of people; they shouldn't have just kept Sue and Dee in the line-up: They should have had additional disabled people up there too. There's a saying among disability rights activists that's been around as long as I can remember; it's possible the statement is older than I am. That saying is "nothing about us without us". And Monday night's debate was almost exclusively about us, but apart from Dee (and Mik managing to get about 3 seconds of soundbite out) it was definitely without us.
But I want to go back to Stringfellow's comments about what we "deserve" and what we "get".
When he said it; I laughed. Loudly. But then I always laugh loudly. My laugh carries for miles; just ask most of this country's comedians. I laughed so loudly that it was my only verbal ejaculation of the evening that was picked up by the microphones. (And I really put effort into heckling in an attempt to be heard; the laugh was just my normal laugh.)
I laughed because the support we get is being cut to the bone. Employment and Support Allowance cuts, Disability Living Allowance cuts, council tax benefit cuts, the bedroom tax, severe disability premium cuts, social care cuts, NHS cuts. Do we deserve that?
What we do currently get - and what we get an increase in every time papers run front pages calling us "scroungers" - is hate.
Disabled people get called "scrounging cunt" in the street for going out while visibly disabled. WtB's Pippa got followed home by someone shouting "fucking DLA stick.". I've been told that I should have been killed at birth to save the taxpayer money.
What we get is told that we're not allowed nice things. When I first got an iPhone I sustained abuse for it. The person abusing me didn't care that it was a Christmas present to replace my broken CrapBerry; disabled people are simply not allowed to own nice things. The media has an obsession with benefit claimants and the size of our TVs. Last autumn I had a TV crew in my living room. Before I was willing to start talking to camera I made them show me the shot so I was sure my telly couldn't be seen. My TV is shit: You can't have the aerial cable and an HDMI cable plugged in at the same time or they cause each other interference. But you can't see the fault from just looking at it (unless you're trying to watch a DVD with the aerial cable plugged in), so if my telly had been shown during my 4thought; the next day the Daily Mail's front page would've said "outrage as benefit claimant owns flat screen TV." Poor people owning stuff really seems to get under people's skin; no matter the circumstances in which they acquired said things.
There have even been cases of people who don't claim a penny in benefits getting abuse for being "scroungers" for merely looking disabled.
Do we deserve that?
Do we deserve to never be able to afford holidays? To only be able to afford Primark clothes? To not be able to upgrade to a TV without a fault? To know that this financial struggle is going to last your whole life because you're an "incurable"?
Katie Hopkins kept claiming that she was there to represent "hard working Britain". What about the 58 year old with cancer who has been working hard and paying National Insurance premiums for 40 years, but has just been refused ESA? That is the whole point of National Insurance. Because disabled people weren't allowed to be part of the debate; no-one pointed out that the system is there precisely to protect hard working Britons.
Hopkins also brought up the number of people being found "fit for work": Because there were no experts on disability benefits on the panel; no-one pointed out that that includes fatally ill people like Larry Newman or Cecilia Burns. I tried heckling "that includes terminally ill people!" But when I watched the show back, I realised that I hadn't been picked up by any of the mics around the room.
She then went on to claim that chancers are pulling out of the ESA process before being assessed by Atos because they're frightened of being caught out. There are all sorts of reasons people stop their claims, including dying. Again I tried heckling "that includes people who've died!" But again went unheard by the audience at home.
Coming from a stand up background, I hate hecklers. I hated having to heckle. But seeing as the producers wouldn't let any disabled people up on the stage to rebut these distorted claims, I was left with no choice but to try shouting.
Before the cameras started rolling, the floor manager told us that if we had something to say; we should say it. She said she didn't want people to leave feeling that they'd not had their voices heard. The lack of disabled people's representation up on that stage meant that voices like mine weren't heard. With the exception of Dee, Jack Monroe and Annabel Giles; the voices we heard from were people who have no idea how miserable life on benefits is, and how cruel people can be to those perceived as "scroungers". Yes, a couple of other people said that they know people on benefits and are aware of their struggles; but trust me: Unless you've lived this, you really don't know just how horrific it feels.
Benefits Street might have made this country obsessed with talking about benefits. It might have made benefits issues a guaranteed ratings winner. But unless you let the people affected by these issues use their own voices in these debates; you've just got people pointlessly arguing for an hour. 'Nothing about us without us' my backside.
Saturday, 25 January 2014
What does it mean when one million people are found fit to work?
DWP says almost one million sick found fit to work reports The Huffington Post:
Those turned down for Employment and Support Allowance are not necessarily making false claims. They may be fit to work but have not understood the rules, or they may be unable to work but have struggled to fill in the form in such a way that conveys this. Some of those turned down may have had a good case for appeal (40% of appeals are successful), but couldn't face the ordeal. The fact that this complex and mixed group number a million people (or strictly speaking, a million claims) seems unremarkable.
The criteria for Employment and Support Allowance are much stricter than those of Incapacity Benefit, the process takes many more months, with many people either dying, getting better or giving up before a decision is made and some claimants' benefit is stopped after the first year if they have savings or a working partner. Despite this, there were still 2.49 million people on ESA and other incapacity-type benefits in 2013, against the 2.6 million on incapacity benefits in 2008.
Reform to this benefit, at massive cost to government, a very great deal of personal stress, heartache and hardship for disabled people and their families, as well as a media-driven regression in social attitudes towards disabled people, has only succeeded in reducing the numbers on this kind of benefit by 110,000 people or a little over 4%.
This is what has been achieved since October 2008; there are a little over four percent fewer people on ESA and related benefits than before. It is unclear whether or not the incapacity bill - either in terms of benefits or the cost of assessing for and administering benefits - has been reduced. A stable 40% of appeals against ESA decisions are successful. Fraud levels (around 0.3% for incapacity benefits) remain stable.
Meanwhile, the vast majority of those found "fit to work" will have simply moved onto other kinds of benefits such as Job Seeker's Allowance. Disabled people who are fit to work remain unlikely to actually get work, largely due to discrimination.
A third (32%) of all new claimants for employment and support allowance (ESA) were assessed as being fit to work and capable of employment between October 2008 and March 2013 - totalling 980,400 people, the Department for Work and Pensions (DWP) said.We've now had five years of reporting the numbers of people turned down for ESA as some kind of success story; they're getting disabled people back into work. A third of those who claimed ESA are being found fit to work. Welfare Reform is justified!
Those turned down for Employment and Support Allowance are not necessarily making false claims. They may be fit to work but have not understood the rules, or they may be unable to work but have struggled to fill in the form in such a way that conveys this. Some of those turned down may have had a good case for appeal (40% of appeals are successful), but couldn't face the ordeal. The fact that this complex and mixed group number a million people (or strictly speaking, a million claims) seems unremarkable.
The criteria for Employment and Support Allowance are much stricter than those of Incapacity Benefit, the process takes many more months, with many people either dying, getting better or giving up before a decision is made and some claimants' benefit is stopped after the first year if they have savings or a working partner. Despite this, there were still 2.49 million people on ESA and other incapacity-type benefits in 2013, against the 2.6 million on incapacity benefits in 2008.
Reform to this benefit, at massive cost to government, a very great deal of personal stress, heartache and hardship for disabled people and their families, as well as a media-driven regression in social attitudes towards disabled people, has only succeeded in reducing the numbers on this kind of benefit by 110,000 people or a little over 4%.
This is what has been achieved since October 2008; there are a little over four percent fewer people on ESA and related benefits than before. It is unclear whether or not the incapacity bill - either in terms of benefits or the cost of assessing for and administering benefits - has been reduced. A stable 40% of appeals against ESA decisions are successful. Fraud levels (around 0.3% for incapacity benefits) remain stable.
Meanwhile, the vast majority of those found "fit to work" will have simply moved onto other kinds of benefits such as Job Seeker's Allowance. Disabled people who are fit to work remain unlikely to actually get work, largely due to discrimination.
Wednesday, 6 March 2013
ESA SOS - The Starting Gun #ESAendgame
Though I'm posting it here, this post was actually written by Sue and originally appeared on her own blog. Please post any comments there.
In a few weeks, I'm going to arrange for some very significant stories to break in the very mainstream press about ESA.
I've been collecting them for about 6 months and if there's any justice left at all, they will kill ESA once and for all.
They will totally change your perception of ESA and WCAs
We need a Spartacus 2 and as you all know, I've been sick as a dog.
Today is stage one. If you're in, please leave your Name and user name on twitter or Facebook (Feel free to only provide the latter if you like to keep your anonymity a little) and Constituency
There will be a task most days, so please keep watching my blog.
Today, I would like something very specific. What is the worst thing, for you about ESA/WCAs? I need you to simply leave a one line answer if possible, ie "1 Year Time Limit - It totally undermines any contributory principle"
The most popular of these "subjects" will make up every short section of the new report.
Share this post everywhere you can. This will be the start of our biggest fightback. EVERYONE will have to give this everything if it is to work. We need hundreds of responses to every request to make this a truly representative report from disabled people, by disabled people. The more join, the more powerful our voice and the more impact any final work will have.
What's more, by crowdsourcing our information and skills, believe me, we have 100 times the resources and ability of the DWP.
I have an awesome team in place - they produced #esaSOS in just 4 days. Hard though it will be, PLEASE, I'm still very weak and CAN'T read endless comments or pages and pages of Hansard or reports. Make this easy for me by keeping as close to the brief each day as you possibly can. I WILL cover everything, nothing will get missed. I'll ask the question you're itching to comment on, honest, but if we do it this way, I can delegate very much and empower you all to know exactly what we need.
Even a shadow of division will see us fail. This will need every group, every campaigner, every supporter, no matter how radical or moderate, how powerful or unknown, every journalist that has supported us, every politician who is fully signed up to our arguments.
If you have a prominent welfare/disability/political voice, website or other outlet, please cross post this from me.
So today, in the comment thread below please leave :
Name and social media name/s (or just the latter if more comfortable)
Constituency
The WORST thing for you about ESA/WCAs in one line.
****ESA is the most terrible failure of any developed nation for a very long time. The reasons are numerous and utterly undeniable. The government has failed to implement Harrington with any commitment and is actively increasing the rate at which vulnerable people face a failing and unfair test. We have engaged with a democratic process that has failed us at every stage. We have no choice left but to stop this ourselves. Over 100,000 people now face some kind of ESA assessment every MONTH. We can't afford to wait. ****
Enough is Enough.
From today, please use the hashtag #ESAendgame in all your tweets. We must build awareness and create an army or support and dissemination.
"Alone we Whisper, Together we Shout"
http://wowpetition.com/
In a few weeks, I'm going to arrange for some very significant stories to break in the very mainstream press about ESA.
I've been collecting them for about 6 months and if there's any justice left at all, they will kill ESA once and for all.
They will totally change your perception of ESA and WCAs
We need a Spartacus 2 and as you all know, I've been sick as a dog.
Today is stage one. If you're in, please leave your Name and user name on twitter or Facebook (Feel free to only provide the latter if you like to keep your anonymity a little) and Constituency
There will be a task most days, so please keep watching my blog.
Today, I would like something very specific. What is the worst thing, for you about ESA/WCAs? I need you to simply leave a one line answer if possible, ie "1 Year Time Limit - It totally undermines any contributory principle"
The most popular of these "subjects" will make up every short section of the new report.
Share this post everywhere you can. This will be the start of our biggest fightback. EVERYONE will have to give this everything if it is to work. We need hundreds of responses to every request to make this a truly representative report from disabled people, by disabled people. The more join, the more powerful our voice and the more impact any final work will have.
What's more, by crowdsourcing our information and skills, believe me, we have 100 times the resources and ability of the DWP.
I have an awesome team in place - they produced #esaSOS in just 4 days. Hard though it will be, PLEASE, I'm still very weak and CAN'T read endless comments or pages and pages of Hansard or reports. Make this easy for me by keeping as close to the brief each day as you possibly can. I WILL cover everything, nothing will get missed. I'll ask the question you're itching to comment on, honest, but if we do it this way, I can delegate very much and empower you all to know exactly what we need.
Even a shadow of division will see us fail. This will need every group, every campaigner, every supporter, no matter how radical or moderate, how powerful or unknown, every journalist that has supported us, every politician who is fully signed up to our arguments.
If you have a prominent welfare/disability/political voice, website or other outlet, please cross post this from me.
So today, in the comment thread below please leave :
Name and social media name/s (or just the latter if more comfortable)
Constituency
The WORST thing for you about ESA/WCAs in one line.
****ESA is the most terrible failure of any developed nation for a very long time. The reasons are numerous and utterly undeniable. The government has failed to implement Harrington with any commitment and is actively increasing the rate at which vulnerable people face a failing and unfair test. We have engaged with a democratic process that has failed us at every stage. We have no choice left but to stop this ourselves. Over 100,000 people now face some kind of ESA assessment every MONTH. We can't afford to wait. ****
Enough is Enough.
From today, please use the hashtag #ESAendgame in all your tweets. We must build awareness and create an army or support and dissemination.
"Alone we Whisper, Together we Shout"
http://wowpetition.com/
Tuesday, 18 December 2012
A Testing Journey
I have my Work Capability Assessment (WCA) on Sunday.
Yes, you read that right: A Sunday. And, yes, 2 days before Christmas. I presume Atos are working weekends in order to claim overtime expenses from the DWP.
I've read news reports about people getting all precious and going to the press saying "why would they want to assess me? Look at me... I'm clearly not fit for work." Erm... that's the point of the assessment: To look at you.
But there was something in the envelope that made my jaw drop in disbelief: A suggested journey plan.
"What's wrong with that? Surely that's Atos being helpful in giving you directions to their centre..."
They told me to take a route that's not wheelchair accessible.
First of all they tell me to walk 16 minutes to Kings Cross tube station. I'm not going to get pedantic about that; I talk of going for "a walk" despite being a wheelchair user. They tell me to take the Circle Line to Edgware Road and then walk another 9 minutes to the testing centre.
Edgware Road has no wheelchair access. In fact the closest wheelchair accessible tube station is Kings Cross.
You have to remember this isn't just a random travel leaflet shoved in with the letter; this is a tailor made journey plan for someone coming from my address to the testing centre at that specific date and time.
Atos haven't seen me in 4.5 years. It's possible that some of my health problems may have changed. But one thing that has not, and will never get any better is my lifelong mobility impairment.
Atos and the DWP know I'm a wheelchair user because of an incurable impairment. My impairment's incurableness is the reason I have an indefinite DLA award.
Further proof that Atos believe in miracles.
Yes, you read that right: A Sunday. And, yes, 2 days before Christmas. I presume Atos are working weekends in order to claim overtime expenses from the DWP.
I've read news reports about people getting all precious and going to the press saying "why would they want to assess me? Look at me... I'm clearly not fit for work." Erm... that's the point of the assessment: To look at you.
But there was something in the envelope that made my jaw drop in disbelief: A suggested journey plan.
"What's wrong with that? Surely that's Atos being helpful in giving you directions to their centre..."
They told me to take a route that's not wheelchair accessible.
First of all they tell me to walk 16 minutes to Kings Cross tube station. I'm not going to get pedantic about that; I talk of going for "a walk" despite being a wheelchair user. They tell me to take the Circle Line to Edgware Road and then walk another 9 minutes to the testing centre.
Edgware Road has no wheelchair access. In fact the closest wheelchair accessible tube station is Kings Cross.
You have to remember this isn't just a random travel leaflet shoved in with the letter; this is a tailor made journey plan for someone coming from my address to the testing centre at that specific date and time.
Atos haven't seen me in 4.5 years. It's possible that some of my health problems may have changed. But one thing that has not, and will never get any better is my lifelong mobility impairment.
Atos and the DWP know I'm a wheelchair user because of an incurable impairment. My impairment's incurableness is the reason I have an indefinite DLA award.
Further proof that Atos believe in miracles.
Thursday, 9 August 2012
Atos found "fit for work"
At the end of last week @hossylass and I were both asked to write a short piece about Atos to go into this satirical paper about the Olympic/Paralympic sponsors. Our submissions were then not included. So I'm posting them here instead. This first post is my submission, while Hossy's is here:
Atos found "fit for work"
French IT company Atos were last week found "fit for work" when they were awarded the contract by the ConDems to assess disabled people for the new benefit Personal Independence Payment (PIP). This is despite them being completely incapable when it comes to assessing people for the existing benefit Employment and Support Allowance (ESA). Atos's conclusions in ESA decisions are frequently challenged and appeals found in favour of the disabled person.
If a disabled person was as lacking in ability as Atos then even Atos would probably find them incapable of functioning in the workplace. Despite Atos not being able to correctly decide if they can wipe their own bums without help from a tribunal panel, they will now be tasked with not only finding out if disabled people are fit for work, but also whether or not disabled people are entitled to help in the bum wiping area. And you need that wipe to be damn effective now: The government have redefined the verb “to bathe” and if you need help when it comes to washing you're now only allowed to wash your hands, face, underarms and torso. So when wiping your butt you need to get it spotless because you're not allowed to clean it in the bath.
Atos operate from the idea everyone's a faker until proved otherwise. The same mindset that has excluded all athletes with learning difficulties from the Paralmypics since the Spanish learning disabled basketball team were found to be mostly comprised of frauds in Sydney in 2000. Genuine athletes with learning difficulties make their return this year after having been excluded for 12 years because of a tiny number of fakers. Disability benefit fraud is less than 0.5% but Atos are torturing all disabled people. Kinda makes it seem like Atos are the perfect sponsor.
Atos found "fit for work"
French IT company Atos were last week found "fit for work" when they were awarded the contract by the ConDems to assess disabled people for the new benefit Personal Independence Payment (PIP). This is despite them being completely incapable when it comes to assessing people for the existing benefit Employment and Support Allowance (ESA). Atos's conclusions in ESA decisions are frequently challenged and appeals found in favour of the disabled person.
If a disabled person was as lacking in ability as Atos then even Atos would probably find them incapable of functioning in the workplace. Despite Atos not being able to correctly decide if they can wipe their own bums without help from a tribunal panel, they will now be tasked with not only finding out if disabled people are fit for work, but also whether or not disabled people are entitled to help in the bum wiping area. And you need that wipe to be damn effective now: The government have redefined the verb “to bathe” and if you need help when it comes to washing you're now only allowed to wash your hands, face, underarms and torso. So when wiping your butt you need to get it spotless because you're not allowed to clean it in the bath.
Atos operate from the idea everyone's a faker until proved otherwise. The same mindset that has excluded all athletes with learning difficulties from the Paralmypics since the Spanish learning disabled basketball team were found to be mostly comprised of frauds in Sydney in 2000. Genuine athletes with learning difficulties make their return this year after having been excluded for 12 years because of a tiny number of fakers. Disability benefit fraud is less than 0.5% but Atos are torturing all disabled people. Kinda makes it seem like Atos are the perfect sponsor.
Friday, 23 March 2012
Budget 2012: the disabled marginalised yet again, with worse to come?
Yesterday's budget contained a kick in the teeth for disabled people, quickly followed by a punch in the face.
The Chancellor's retreat on child benefit, moving the threshold for ineligibility from those earning over £43,000 to those earning over £60,000, was a bare-faced example of the Government looking after its own voters. When the planned benefit cut was announced last year there were howls of outrage amongst higher rate earners, and the Tories, mindful an election has to be fought in perhaps two years time, decided to try and save their own skins.
How is this relevant to disabled people?
When the recent Welfare reform Bill passed through the House of Lords, three defeats were enacted on the Government as the Lords chose to make changes that they believed would safe-guard some of the most sick and disabled in the country. One of those changes was to extend the length of time that people on contributory-based Employment Support Allowance could claim the benefit. The Government proposed that those people place in the Working Capability Group of ESA (so claimants who are too ill to work but should be able to in the future) could only claim the benefit for a year. The Lords voted to extend this to two years to ensure that people had enough time to get better before being forced into work. Macmillan cancer support for example argued that annually 7.000 cancer patients, routinely placed in the Working group of ESA, take longer than 12 months to recover.
Although the Lords followed due democratic process to enact these changes, they have not come into force. The Government used 'financial privilege' to block these amendments. In short, MPs cried "Sorry, no money!" and did so in a way that has seen no precedent.
But suddenly come budget day, the Government discovered a stash of cash to save the child benefit of higher rate tax-payers, those who are doing ok in life, and yet still no money to extend ESA for those who are too sick to work through no fault of their own. More worryingly for democracy, the Government places greater value on the opinion of its voters then on the democratic process of a Bill being passed into law.
The second fear hidden in the budget was Osborne's casual mention that Ian Duncan Smith would have to find a further £10 billion of welfare cuts on top of the £18 billion already slashed from these bills. The biggest slice of welfare is spent on old age - with today's vicious headlines about a granny tax I can't see the Government making any further cuts to pensioners. Child benefit cuts now seem completely off the table, a decision that Ian Duncan Smith may come to resent Osborne for as he frantically tries to cut £10 billion.
So where can more cuts be found? Housing benefit perhaps, childcare credits even, but a clear forerunner would be disability benefits. Disability Living Allowance is already scheduled to be scrapped next year, and replaced by Personal Independence Payments (PIP). In the Government's last spending review it arbitrarily decided to cut recipients of PIP by 20%, before it had even decided the criteria for eligibility or assessed the needs of a single disabled person.
What's the betting that in the next spending review the Government decides to save 25% or even 30% from the PIP bill? I, for one, am very worried.
As first published on nhsbuff
The Chancellor's retreat on child benefit, moving the threshold for ineligibility from those earning over £43,000 to those earning over £60,000, was a bare-faced example of the Government looking after its own voters. When the planned benefit cut was announced last year there were howls of outrage amongst higher rate earners, and the Tories, mindful an election has to be fought in perhaps two years time, decided to try and save their own skins.
How is this relevant to disabled people?
When the recent Welfare reform Bill passed through the House of Lords, three defeats were enacted on the Government as the Lords chose to make changes that they believed would safe-guard some of the most sick and disabled in the country. One of those changes was to extend the length of time that people on contributory-based Employment Support Allowance could claim the benefit. The Government proposed that those people place in the Working Capability Group of ESA (so claimants who are too ill to work but should be able to in the future) could only claim the benefit for a year. The Lords voted to extend this to two years to ensure that people had enough time to get better before being forced into work. Macmillan cancer support for example argued that annually 7.000 cancer patients, routinely placed in the Working group of ESA, take longer than 12 months to recover.
Although the Lords followed due democratic process to enact these changes, they have not come into force. The Government used 'financial privilege' to block these amendments. In short, MPs cried "Sorry, no money!" and did so in a way that has seen no precedent.
But suddenly come budget day, the Government discovered a stash of cash to save the child benefit of higher rate tax-payers, those who are doing ok in life, and yet still no money to extend ESA for those who are too sick to work through no fault of their own. More worryingly for democracy, the Government places greater value on the opinion of its voters then on the democratic process of a Bill being passed into law.
The second fear hidden in the budget was Osborne's casual mention that Ian Duncan Smith would have to find a further £10 billion of welfare cuts on top of the £18 billion already slashed from these bills. The biggest slice of welfare is spent on old age - with today's vicious headlines about a granny tax I can't see the Government making any further cuts to pensioners. Child benefit cuts now seem completely off the table, a decision that Ian Duncan Smith may come to resent Osborne for as he frantically tries to cut £10 billion.
So where can more cuts be found? Housing benefit perhaps, childcare credits even, but a clear forerunner would be disability benefits. Disability Living Allowance is already scheduled to be scrapped next year, and replaced by Personal Independence Payments (PIP). In the Government's last spending review it arbitrarily decided to cut recipients of PIP by 20%, before it had even decided the criteria for eligibility or assessed the needs of a single disabled person.
What's the betting that in the next spending review the Government decides to save 25% or even 30% from the PIP bill? I, for one, am very worried.
As first published on nhsbuff
Monday, 19 March 2012
The Government’s disability strategy out of touch with the reality of cuts
Earlier this month the Government ended its consultation period asking disabled people to help develop its disability strategy. Maria Miller, minister for disabled people, has said that: “The Government is committed to enabling disabled people to fulfil their potential and have the opportunity to play a full role in their community”. But in reality it is clear that the Government lacks any cohesive policy that will enable this to happen.
In the last three years 31 people have died while awaiting appeals against Employment and Support Allowance (ESA) medicals that had found them fit to work. At their most vulnerable, the sick and disabled were left worrying to the day they died about how they and their family would cope financially while their illness was slowly killing them. Society should be in uproar that people in dire need turned to the state for help and were failed by it, but instead media and Government debate focuses on disabled ‘scroungers’, further isolating the disabled from their communities.
Yet while it could be argued in the case of ESA that Government incompetence is forcing disabled people into hardship, the same cannot be said for Personal Independence Payments (PIP), the new benefit that is replacing Disability Living Allowance (DLA). Under PIP eligibility rules, even if you cannot walk more than 50 metres and need a wheelchair to get about for any longer distances, a disabled person still won’t be eligible for higher rate mobility – which in short means they will most likely lose access to a car through the motability scheme and the freedom such a vehicle gives them that their body cannot.
By cold-hearted design, these ‘independence payments’ will in fact take independence away from severely disabled people and force them to remain in their homes. No wonder Lady Grey-Thompson, speaking to the Guardian last month, said: “I worry that it is going to become the way it was when I was young where you just didn’t see disabled people on the street because they were locked away.”
These aren’t the only cuts aimed at disabled people. The Department of Work and Pensions’ own analysis into the housing benefit reforms states that 450,000 disabled people will face cuts to their allowance under new rules. 78,000 disabled people who use legal aid to appeal against decisions to deny them benefit will lose this support under Ken Clarke’s reforms. The Independent Living Fund (ILF) has been entirely closed to new claimants and by 2015 payments to the 21,000 severely disabled people it helps will cease. Tax credits to help with the extra costs of raising a disabled child will be cut from a maximum of £54 a week to £27 a week under Ian Duncan Smith’s Universal Credit changes – cuts that the Children’s Society says will see some families with disabled offspring £1,400 worse off a year. According to a Government Select Committee on Health, nearly two thirds of local authorities in England have reduced their disabled and adult social care budgets. As such councils have drastically altered their criteria for providing care to disabled adults, leaving many people unable to wash and dress themselves properly isolated in their own filth as they are not disabled enough to qualify for care.
These cuts will severely curtail disabled people’s ability to “fulfil their potential”. PIP will actually remove independence from disabled people, the scrapping of ILF will see disabled people condemned to care homes, decisions to limit ESA to one year, leaving 7000 cancer patients without any financial support while they are still too unwell to work, will only help in moving disabled people into poverty, not into the workplace. Cuts to legal aid will take away their voice, housing benefit remove them from often supportive communities and homes that are specially adapted for their needs. Harsh reductions in social care budgets will see people stuck in hospital for longer periods of time as they cannot be discharged into communities because they lack provision for their basic care. Disabled people were already twice as likely to be living in poverty than others before these cuts were imposed: no wonder disabled people up and down the country are scared stiff of these ‘reforms’.
The Government’s consultation document, entitled ‘Fulfilling potential’, makes specific mention of “tackling discrimination” towards disabled people and “promoting positive attitudes”. Yet charities have directly linked a rise in disabled abuse with the increasing rhetoric from Government ministers that disabled people are scrounging off society.
So bad has the Government’s attitude become that disability groups are now questioning whether they can continue to work with it on shaping further welfare reforms.
By the end of this parliament, if all these cuts are implemented, far from disabled people fulfilling their potential, the Coalition would instead have successfully reversed twenty years of advances made in helping the disabled play a valued and active part in society. Shame on all MPs if that is their intention. And if it isn’t, then the Government must wake up to the impact of these cuts, ban negative ministerial rhetoric linking the disabled with ‘scroungers’ and honour its supposed desire to develop policies that give back respect and support to some of the most vulnerable people in society.
Previously published on the blog nhsbuff (apologies for the slow cross posting - illness took my eye off the ball)
In the last three years 31 people have died while awaiting appeals against Employment and Support Allowance (ESA) medicals that had found them fit to work. At their most vulnerable, the sick and disabled were left worrying to the day they died about how they and their family would cope financially while their illness was slowly killing them. Society should be in uproar that people in dire need turned to the state for help and were failed by it, but instead media and Government debate focuses on disabled ‘scroungers’, further isolating the disabled from their communities.
Yet while it could be argued in the case of ESA that Government incompetence is forcing disabled people into hardship, the same cannot be said for Personal Independence Payments (PIP), the new benefit that is replacing Disability Living Allowance (DLA). Under PIP eligibility rules, even if you cannot walk more than 50 metres and need a wheelchair to get about for any longer distances, a disabled person still won’t be eligible for higher rate mobility – which in short means they will most likely lose access to a car through the motability scheme and the freedom such a vehicle gives them that their body cannot.
By cold-hearted design, these ‘independence payments’ will in fact take independence away from severely disabled people and force them to remain in their homes. No wonder Lady Grey-Thompson, speaking to the Guardian last month, said: “I worry that it is going to become the way it was when I was young where you just didn’t see disabled people on the street because they were locked away.”
These aren’t the only cuts aimed at disabled people. The Department of Work and Pensions’ own analysis into the housing benefit reforms states that 450,000 disabled people will face cuts to their allowance under new rules. 78,000 disabled people who use legal aid to appeal against decisions to deny them benefit will lose this support under Ken Clarke’s reforms. The Independent Living Fund (ILF) has been entirely closed to new claimants and by 2015 payments to the 21,000 severely disabled people it helps will cease. Tax credits to help with the extra costs of raising a disabled child will be cut from a maximum of £54 a week to £27 a week under Ian Duncan Smith’s Universal Credit changes – cuts that the Children’s Society says will see some families with disabled offspring £1,400 worse off a year. According to a Government Select Committee on Health, nearly two thirds of local authorities in England have reduced their disabled and adult social care budgets. As such councils have drastically altered their criteria for providing care to disabled adults, leaving many people unable to wash and dress themselves properly isolated in their own filth as they are not disabled enough to qualify for care.
These cuts will severely curtail disabled people’s ability to “fulfil their potential”. PIP will actually remove independence from disabled people, the scrapping of ILF will see disabled people condemned to care homes, decisions to limit ESA to one year, leaving 7000 cancer patients without any financial support while they are still too unwell to work, will only help in moving disabled people into poverty, not into the workplace. Cuts to legal aid will take away their voice, housing benefit remove them from often supportive communities and homes that are specially adapted for their needs. Harsh reductions in social care budgets will see people stuck in hospital for longer periods of time as they cannot be discharged into communities because they lack provision for their basic care. Disabled people were already twice as likely to be living in poverty than others before these cuts were imposed: no wonder disabled people up and down the country are scared stiff of these ‘reforms’.
The Government’s consultation document, entitled ‘Fulfilling potential’, makes specific mention of “tackling discrimination” towards disabled people and “promoting positive attitudes”. Yet charities have directly linked a rise in disabled abuse with the increasing rhetoric from Government ministers that disabled people are scrounging off society.
So bad has the Government’s attitude become that disability groups are now questioning whether they can continue to work with it on shaping further welfare reforms.
By the end of this parliament, if all these cuts are implemented, far from disabled people fulfilling their potential, the Coalition would instead have successfully reversed twenty years of advances made in helping the disabled play a valued and active part in society. Shame on all MPs if that is their intention. And if it isn’t, then the Government must wake up to the impact of these cuts, ban negative ministerial rhetoric linking the disabled with ‘scroungers’ and honour its supposed desire to develop policies that give back respect and support to some of the most vulnerable people in society.
Previously published on the blog nhsbuff (apologies for the slow cross posting - illness took my eye off the ball)
Wednesday, 29 February 2012
Sanctions removed from work experience - but only a small victory
The government today caved in to bad publicity and agreed to remove the possibility of sanctions from those who refuse to take part in the work experience scheme. Those guilty of gross misconduct may still be sanctioned with removal of benefits.
However, a DWP spokesperson confirmed this afternoon that it is only the work experience scheme which is affected by this change. Those on the work programme, which is run by third party providers such as the disgraced A4e, may still face sanctions if they do not cooperate with the programme. As detailed in the previous article on this site, it is mandatory to attend the work programme after a set amount of time receiving Job Seekers Allowance or Employment Support Allowance. The DWP spokesperson pointed out that the work programme provides much more than just work experience placements and referral to the programme does not necessarily mean undertaking work experience.
I also raised the issue of those who are receiving ESA and placed in the work related activity group being referred to the work programme and possibly for work experience. This is problematic since at the current time many people overturn the decision to place them in the WRAG on appeal and appeals can take a year in many cases so that people who are not fit for the work programme, never mind fit for work might be sent for work experience. The spokesperson did point out that people can present evidence and ask for a reconsideration before going for an appeal, although since at least 40% of those who appeal their decision go on to overturn it I do not think this is enough to ensure that everyone on the work programme is physically and mentally up to the task.
As it stands then, the removal of sanctions from the work experience scheme is a minor victory but the danger is that it will convince the public that all is well once more and the anger over people being made to work without pay may cool. Jobseekers and sick people can still be referred to the work programme where companies such as A4e can send people to do unpaid work experience or face loss of benefits. In the case of those who recieve ESA there is no limit to the length of time they may be made to work without pay.
However, a DWP spokesperson confirmed this afternoon that it is only the work experience scheme which is affected by this change. Those on the work programme, which is run by third party providers such as the disgraced A4e, may still face sanctions if they do not cooperate with the programme. As detailed in the previous article on this site, it is mandatory to attend the work programme after a set amount of time receiving Job Seekers Allowance or Employment Support Allowance. The DWP spokesperson pointed out that the work programme provides much more than just work experience placements and referral to the programme does not necessarily mean undertaking work experience.
I also raised the issue of those who are receiving ESA and placed in the work related activity group being referred to the work programme and possibly for work experience. This is problematic since at the current time many people overturn the decision to place them in the WRAG on appeal and appeals can take a year in many cases so that people who are not fit for the work programme, never mind fit for work might be sent for work experience. The spokesperson did point out that people can present evidence and ask for a reconsideration before going for an appeal, although since at least 40% of those who appeal their decision go on to overturn it I do not think this is enough to ensure that everyone on the work programme is physically and mentally up to the task.
As it stands then, the removal of sanctions from the work experience scheme is a minor victory but the danger is that it will convince the public that all is well once more and the anger over people being made to work without pay may cool. Jobseekers and sick people can still be referred to the work programme where companies such as A4e can send people to do unpaid work experience or face loss of benefits. In the case of those who recieve ESA there is no limit to the length of time they may be made to work without pay.
Friday, 17 February 2012
The Magical Thinking at DWP Gets Worse
In my earlier piece on Magical Thinking, I said that it was clear that DWP didn't have the faintest understanding of long-term disability, and were basing their policy on their lack of understanding.
Just how bad that lack of understanding is became chillingly clear in an article in the Guardian on Thursday. The article reports that in a meeting with disability groups in December, DWP announced that it intended to extend a Workfare-like scheme to disabled people. Under Workfare, unemployed people can be forced to take 30 hours a week of unpaid work experience for 8 weeks, or even 6 months in some cases, with the threat of being sanctioned and their benefit withdrawn if they do not comply. Workfare is already under severe fire from many unions and campaigning groups who view it as akin to slave labour, with people effectively working for far less than the minimum wage and jobs effectively taken permanently out of the marketplace as companies like Poundland, Asda, Tesco, Argos and others just take one Workfare assignee after another. Public pressure has already forced several companies, such as Sainsbury's and Waterstones, to withdraw from the scheme.
For disabled people the potential of Workfare alone would be bad enough, but when asked about time limits on the disability scheme, a DWP official said "There are no plans to introduce a maximum time limit." and also made it clear that sanctions would be applied to force people onto the scheme, or punish them if they refused: "Ministers strongly feel there is a link-up to support those moving close to the labour market, and the individual's responsibility to engage with the support. Ministers feel sanctions are an incentive for people to comply with their responsibility."
The scheme will be targeted at people in the ESA WRAG, which includes people with long term disabilities which are severe enough to mean they are not currently capable of work, but are expected to potentially be capable at some point in the future. As I made clear in my earlier article, that 'potentially' means 'might become capable', not 'will become capable' and for many people we are looking at years not decades of them being unfit for work. Unfortunately DWP are sticking their head in the sand in an attempt to deny the reality of disability and replace that reality with magical thinking in which we all have miracle cures at the 12 month mark and become miraculously capable of competing in the job market on an equal footing with none disabled people. Forcing anyone from WRAG into work is a subversion of what the scheme is supposed to stand for, and the limits on the scheme as currently proposed mean it could even be applied to someone with a terminal illness if they have more than six months to live. Worse, it could be applied to someone with severe mental health issues, with no regard for the consequences to their mental health, or to someone with a physical disability with no thought to the negative physical consequences for them.
We knew DWP was being run to an ideological diktat, sorry, Christian principles, with a disregard for facts that would have embarrassed the Communist Party of the Soviet Union at its worst, but this is a step far, far beyond the pale. I know both from direct personal experience and the experience of others that JCP Disability Employment Advisers have an appalling inability to recognise and understand disability, in particular how it will impact working (which considering that is their sole professional purpose is a pretty utter failure). To now give these people the ability to decide on their own initiative that a disabled person should be forced into a work assignment, with only the vaguest notion of what the consequences for that person's health might be, is taking the DWP's duty of care and tossing it not just out of the window but into a passing bin wagon.
A lot of stuff coming out of the DWP worries me, but the consequences of this notion truely scare me. The whole point of people being in the ESA WRAG is that they have been assessed as not currently fit for work, and to design a scheme whose sole purpose is to force people who aren't fit for work into work, and then to try and justify it both having no limits and being subject to sanctions, suggests that DWP are truly placing diktat above reality and that magical thinking has displaced any other form of thinking they might once have been capable of.
(Edited to correct who has withdrawn from Workfare - should have been Sainsburys, not Tesco, Tesco admit to having taken 1400 people under the scheme in the past 4 months, potentially 168,000 hours of unpaid work ).
Just how bad that lack of understanding is became chillingly clear in an article in the Guardian on Thursday. The article reports that in a meeting with disability groups in December, DWP announced that it intended to extend a Workfare-like scheme to disabled people. Under Workfare, unemployed people can be forced to take 30 hours a week of unpaid work experience for 8 weeks, or even 6 months in some cases, with the threat of being sanctioned and their benefit withdrawn if they do not comply. Workfare is already under severe fire from many unions and campaigning groups who view it as akin to slave labour, with people effectively working for far less than the minimum wage and jobs effectively taken permanently out of the marketplace as companies like Poundland, Asda, Tesco, Argos and others just take one Workfare assignee after another. Public pressure has already forced several companies, such as Sainsbury's and Waterstones, to withdraw from the scheme.
For disabled people the potential of Workfare alone would be bad enough, but when asked about time limits on the disability scheme, a DWP official said "There are no plans to introduce a maximum time limit." and also made it clear that sanctions would be applied to force people onto the scheme, or punish them if they refused: "Ministers strongly feel there is a link-up to support those moving close to the labour market, and the individual's responsibility to engage with the support. Ministers feel sanctions are an incentive for people to comply with their responsibility."
The scheme will be targeted at people in the ESA WRAG, which includes people with long term disabilities which are severe enough to mean they are not currently capable of work, but are expected to potentially be capable at some point in the future. As I made clear in my earlier article, that 'potentially' means 'might become capable', not 'will become capable' and for many people we are looking at years not decades of them being unfit for work. Unfortunately DWP are sticking their head in the sand in an attempt to deny the reality of disability and replace that reality with magical thinking in which we all have miracle cures at the 12 month mark and become miraculously capable of competing in the job market on an equal footing with none disabled people. Forcing anyone from WRAG into work is a subversion of what the scheme is supposed to stand for, and the limits on the scheme as currently proposed mean it could even be applied to someone with a terminal illness if they have more than six months to live. Worse, it could be applied to someone with severe mental health issues, with no regard for the consequences to their mental health, or to someone with a physical disability with no thought to the negative physical consequences for them.
We knew DWP was being run to an ideological diktat, sorry, Christian principles, with a disregard for facts that would have embarrassed the Communist Party of the Soviet Union at its worst, but this is a step far, far beyond the pale. I know both from direct personal experience and the experience of others that JCP Disability Employment Advisers have an appalling inability to recognise and understand disability, in particular how it will impact working (which considering that is their sole professional purpose is a pretty utter failure). To now give these people the ability to decide on their own initiative that a disabled person should be forced into a work assignment, with only the vaguest notion of what the consequences for that person's health might be, is taking the DWP's duty of care and tossing it not just out of the window but into a passing bin wagon.
A lot of stuff coming out of the DWP worries me, but the consequences of this notion truely scare me. The whole point of people being in the ESA WRAG is that they have been assessed as not currently fit for work, and to design a scheme whose sole purpose is to force people who aren't fit for work into work, and then to try and justify it both having no limits and being subject to sanctions, suggests that DWP are truly placing diktat above reality and that magical thinking has displaced any other form of thinking they might once have been capable of.
(Edited to correct who has withdrawn from Workfare - should have been Sainsburys, not Tesco, Tesco admit to having taken 1400 people under the scheme in the past 4 months, potentially 168,000 hours of unpaid work ).
Thursday, 12 January 2012
ESA amendments success in Lords
Yesterday the Welfare Reform Bill (WRB) was debated in the House of Lords. Specifically three amendments that relate to Employment and Support Allowance (ESA).
These amendments were to keep the automatic entitlement to ESA for young disabled people. In order to qualify for the contribution based ESA a person must have made a certain level of NI contributions in the two years before the claim. Previously people such as myself who had never been able to work were given an exemption from this requirement if their disability started before age 20. A kind of levelling of the playing field for those of us who've never had the chance to earn and make NI contributions. If I hadn't had that automatic entitlement to Incapacity Benefit (one of the benefits ESA is replacing) I wouldn't have been able to leave home and go to university. My parents would still be my carers and my mum wouldn't be running her own business.
The government had intended to remove this aspect under the WRB. The amendment called for it to be kept.It was believed that this would be a "too close to call" vote but the Government were defeated with 260 votes for the amendment and 216 against.
The second and third amendments related to the plans to limit entitlement to contribution based ESA to just one year. Some claimants would then be able to go on to claim income based ESA if this time limit did come in in the WRB. But those who had a partner who was working would lose out entirely even if their income is as little as £16K a year. This is likely to lead to increased poverty and knock on affects such as worsening health. Campaigner Sue Marsh has shared how if she lost her ESA the only way they could cope would be if her husband gave up his job to become her carer.
So the second amendment called for the time limit to be increased to two years. This was passed with 234 voting for the amendment and 186 against.
The third amendment called for cancer patients to be exempted from ESA time. In this vote 222 lords voted for the amendment and 166 voting against. This meant an unprecedented third defeat in a row for the government and a much needed boost for campaigners after the work that had gone into promoting The Spartacus Report etc. We haven't won and we can't rest yet but we have achieved something.
Unfortunately however later that evening after most of the Lords had left Lord Freud proposed another amendment to take out the entitlement to ESA for young people. This was passed 132 for, 49 against. At the point this happened the WRB debate had ended. It was restarted for this. As Steven Sumpter explains this is against usual parliamentary procedure and I for one would like to know about the legality of what happened.
The Guardian and The BBC have good coverage of the debates although neither of them cover the sneaky fourth amendment of Lord Freud. The results of the votes are also available.
These amendments were to keep the automatic entitlement to ESA for young disabled people. In order to qualify for the contribution based ESA a person must have made a certain level of NI contributions in the two years before the claim. Previously people such as myself who had never been able to work were given an exemption from this requirement if their disability started before age 20. A kind of levelling of the playing field for those of us who've never had the chance to earn and make NI contributions. If I hadn't had that automatic entitlement to Incapacity Benefit (one of the benefits ESA is replacing) I wouldn't have been able to leave home and go to university. My parents would still be my carers and my mum wouldn't be running her own business.
The government had intended to remove this aspect under the WRB. The amendment called for it to be kept.It was believed that this would be a "too close to call" vote but the Government were defeated with 260 votes for the amendment and 216 against.
The second and third amendments related to the plans to limit entitlement to contribution based ESA to just one year. Some claimants would then be able to go on to claim income based ESA if this time limit did come in in the WRB. But those who had a partner who was working would lose out entirely even if their income is as little as £16K a year. This is likely to lead to increased poverty and knock on affects such as worsening health. Campaigner Sue Marsh has shared how if she lost her ESA the only way they could cope would be if her husband gave up his job to become her carer.
So the second amendment called for the time limit to be increased to two years. This was passed with 234 voting for the amendment and 186 against.
The third amendment called for cancer patients to be exempted from ESA time. In this vote 222 lords voted for the amendment and 166 voting against. This meant an unprecedented third defeat in a row for the government and a much needed boost for campaigners after the work that had gone into promoting The Spartacus Report etc. We haven't won and we can't rest yet but we have achieved something.
Unfortunately however later that evening after most of the Lords had left Lord Freud proposed another amendment to take out the entitlement to ESA for young people. This was passed 132 for, 49 against. At the point this happened the WRB debate had ended. It was restarted for this. As Steven Sumpter explains this is against usual parliamentary procedure and I for one would like to know about the legality of what happened.
The Guardian and The BBC have good coverage of the debates although neither of them cover the sneaky fourth amendment of Lord Freud. The results of the votes are also available.
Sunday, 8 January 2012
Time Limiting ESA / Clause 51 Amendment
At the moment the Welfare Reform Bill proposes to limit Contributory ESA (cESA) to one year.
This means that if you become too ill to work (for example, if you develop cancer) and you have a partner that earns more the £7,500pa you will not be entitled to any income-replacement benefit. Could the 2 of you really cope on so little? Especially if one of you has such a costly condition?
Lords Patel and McKenzie have put forward the following amendment:
The vote on the amendment is on this Wednesday, 11th January 2012.
We need to lobby Lords before Wednesday. So far the votes have been close.
The Labour peers are planning to vote for the amendment. It's safe to say that the Tories will vote against. What's important is lobbying the Lib Dems and the Crossbench peers. There's a list of all the Peers that user Twitter here (not organised by party, sorry. But if anyone's got the time to create Twitter lists of the Lib Dem and/or crossbench Peers do let us know!)and there's a list of the Email addresses of Lib Dem peers here.
If you can't convince Lib Dem peers to support the amendment, then the next best thing is convincing them to abstain.
There's further info about the amendment in this pdf from the Disability Benefits Consortium that @kmachin dug up.
This means that if you become too ill to work (for example, if you develop cancer) and you have a partner that earns more the £7,500pa you will not be entitled to any income-replacement benefit. Could the 2 of you really cope on so little? Especially if one of you has such a costly condition?
Lords Patel and McKenzie have put forward the following amendment:
Page 36, line 34, leave out “365 days” and insert “a prescribed number of days which must be
at least 730”
The vote on the amendment is on this Wednesday, 11th January 2012.
We need to lobby Lords before Wednesday. So far the votes have been close.
The Labour peers are planning to vote for the amendment. It's safe to say that the Tories will vote against. What's important is lobbying the Lib Dems and the Crossbench peers. There's a list of all the Peers that user Twitter here (not organised by party, sorry. But if anyone's got the time to create Twitter lists of the Lib Dem and/or crossbench Peers do let us know!)and there's a list of the Email addresses of Lib Dem peers here.
If you can't convince Lib Dem peers to support the amendment, then the next best thing is convincing them to abstain.
There's further info about the amendment in this pdf from the Disability Benefits Consortium that @kmachin dug up.
Wednesday, 21 September 2011
Terminally ill people told to go back to work
Not content with the current cuts to benefits, the Department of Work and Pensions has been sending worrying letters about the Welfare Reform Bill, which has yet to be passed.
Terminally ill people claiming Employment and Support Allowance have received letters telling them that as of April 2012, ESA will only be paid for a year to those in the Work-Related Activity group. However, this change is retrospective so people currently receiving ESA could lose it when the new rule comes in.
Understandably this news has been met with shock by disability groups. Neil Coyle of Disability Alliance told the Guardian: "The impact of cutting support will be devastating for people already told they only have a limited time left to live. Many will have worked for years and will feel they deserve a little support in return until they pass away.”
It is reported that the cost of sending these notification letters is £2.7m.
A DWP spokesman said “The process of working may be helpful in giving [terminally ill people] a sense of being useful and prolonging their lives.” But in a economic climate where it’s hard enough for an able-bodied person to find work, the challenge of finding work for someone with a life-limiting condition may be a step too far.
Terminally ill people claiming Employment and Support Allowance have received letters telling them that as of April 2012, ESA will only be paid for a year to those in the Work-Related Activity group. However, this change is retrospective so people currently receiving ESA could lose it when the new rule comes in.
Understandably this news has been met with shock by disability groups. Neil Coyle of Disability Alliance told the Guardian: "The impact of cutting support will be devastating for people already told they only have a limited time left to live. Many will have worked for years and will feel they deserve a little support in return until they pass away.”
It is reported that the cost of sending these notification letters is £2.7m.
A DWP spokesman said “The process of working may be helpful in giving [terminally ill people] a sense of being useful and prolonging their lives.” But in a economic climate where it’s hard enough for an able-bodied person to find work, the challenge of finding work for someone with a life-limiting condition may be a step too far.
Wednesday, 31 August 2011
Lib Dem Minister Washes Hands Over ESA Criticism
Steve Webb, the junior Liberal Democrat minister left in charge at the DWP while his Tory bosses are on holiday, has responded to the savage criticism (in oh-so-polite parliamentary language) of his department's handling of ESA figures by both the Select Committee on Work and Pensions and the UK Statistical Authority (which considered the situation bad enough it had to invoke its statutory powers to intervene), by writing to Dame Anne Begg, chair of the Select Committee.
Yet according to Dame Anne, his response addresses neither the criticism of the language used around the statistics, nor the use of the statistics, nor the Select Committee's call for DWP to discuss the use of the statistics with newspaper editors and did nothing to reassure her over the DWP's off-the-record briefings to newspapers - which leaves you wondering what he did address. Dame Anne described the letter as 'not satisfactory,' 'very short' and 'overly dismissive', while describing ministers as 'shrugging their shoulders'.
It seems the DWP treat the Select Committee with the same contempt they treat us!
See the article here by WWW.DisabilityNewService.Com for the full story.
Wednesday, 27 July 2011
Repeat
(Originally posted at This Is My Blog.)
I know this is ground we've covered before, but a look at today's front pages makes it necessary to go over it again.
In the UK, we have a welfare system. The disability benefit side of it has been being overhauled for the last few years. Labour started it, the Coalition are continuing it, they're using the same company (Atos) to execute it and the same advisor (Lord Freud) to justify it. This is not a party-political issue - red, blue or yellow, to borrow a phrase, they're all in it together.
In summary:
Leaving aside all the arguments about whether the system is fair, how their fitness-to-work tests relate to what is required to perform a job in the real world, and so on... the Department for Work and Pensions released these statistics yesterday, about ESA applicants over the last two years:
Today, the Express have taken these numbers and decided that 1% (still in assessment phase) plus 7% (Support group ESA) plus 17% (WRA group ESA) equals 25% of applicants approved to receive some form of ESA. So far, so true. However, their headline screams that therefore the remaining 75% - those moved onto JSA, and those who drop out of the system entirely - are "faking".
This is simply not true.
The fact that a person has failed to score enough points to get ESA (yes, it really is a points-based computer system) does not mean that they scored no points whatsoever, or even that they're not disabled, just that they're not quite disabled enough to be Officially unfit for work. That's why we have the assessment process! To assess people!
To apply to be assessed is not "faking".
To have a level of impairment that falls just short of the ESA bar is not "faking".
There will also be quite a few applicants who suffered an acute injury or illness (for instance, they were in a car accident) and were advised to apply for ESA as a temporary or worst case scenario - but in the 13-week assessment period, they have recovered well so they have been moved to JSA or have returned to work.
To recover from an illness or injury does not mean that the illness or injury was "faked".
There are also the people who get placed onto Jobseeker's Allowance, and go to appeal, and win. The rate of people winning their appeals is around 40% and this increases to 70% where the appellant has someone to represent them. Regrettably, there are also a number of genuinely disabled people who simply don't have the wherewithal to fight an appeal, and have to attempt to survive without the benefits they need. I myself have been in this situation.
To be too ill to fight is not "faking".
There are people who, during their assessment period, are fortunate to find a suitable job which is prepared to make the necessary adjustments, or who, like myself, have enough personal support around them to enable them to be self-employed.
To return to the taxpaying workforce is not "faking".
A very few people will be fortunate enough to have other resources to fall back on. Perhaps an insurance payout of some kind, or a lottery win, or the sale of assets, will save them from the indignity of having to complete a process that treats them as the worst kind of fraudster from beginning to end.
To have alternative resources is not "faking".
Most significantly, there are those who die before the assessment phase is complete.
To die of a condition is perhaps the strongest possible indicator that the condition was not "faked".
I'd provide more concrete statistics, but we don't have them. Once you leave ESA, you're not monitored. We don't know how many of these people have got jobs, have died, have killed themselves, have left the country... no one cares. The Express just goes ahead and calls them all "fakers".
I know this is ground we've covered before, but a look at today's front pages makes it necessary to go over it again.
In the UK, we have a welfare system. The disability benefit side of it has been being overhauled for the last few years. Labour started it, the Coalition are continuing it, they're using the same company (Atos) to execute it and the same advisor (Lord Freud) to justify it. This is not a party-political issue - red, blue or yellow, to borrow a phrase, they're all in it together.
In summary:
- If you have a doctor's note stating that you are unable to work because of illness, injury or impairment, you apply for Employment Support Allowance (ESA). For the first 13 weeks of your claim you are paid the "assessment phase" rate of up to £67.50 per week.
- If the assessment classifies you as entirely unable to work, and unlikely to ever be able to work, for instance because you are bedbound and terminally ill with a life expectancy of less than a year, you are granted unconditional ESA at the "support" rate of up to £99.85 per week.
- If the assessment decides that, although your disabilities are substantial, you would be able to do *some* work at *some* point in the future with the right conditions/support/equipment/adjustments, then you are awarded ESA at the "work-related activity" rate of up to £94.25 per week. To continue to receive this you must attend regular work-related activities.
- If the assessment determines that your NHS-diagnosed conditions are not severe enough to substantially impair your ability to work in an office environment, or that you would only require minor adjustments, you are deemed "fit to work". You don't get ESA at all, and are placed on Job Seekers Allowance (JSA) which is a smaller amount of money with much higher conditionality attached. If you are fortunate, there may be a note on your jobseeking file excusing you from mandatory application for specific jobs that would aggravate or be incompatible with your condition (for instance someone with speech and hearing difficulties may be "fit to work" but excused from mandatory application for call-centre jobs).
Leaving aside all the arguments about whether the system is fair, how their fitness-to-work tests relate to what is required to perform a job in the real world, and so on... the Department for Work and Pensions released these statistics yesterday, about ESA applicants over the last two years:
- 7% were incapable of any work (Support group)
- 17% were able to do some sort of work given the correct support (Work-related activity group)
- 39% were deemed to be fit for work and were moved onto jobseeker's allowance
- 36% dropped out of the application process
- 1% of applications were still in progress
Today, the Express have taken these numbers and decided that 1% (still in assessment phase) plus 7% (Support group ESA) plus 17% (WRA group ESA) equals 25% of applicants approved to receive some form of ESA. So far, so true. However, their headline screams that therefore the remaining 75% - those moved onto JSA, and those who drop out of the system entirely - are "faking".
This is simply not true.
The fact that a person has failed to score enough points to get ESA (yes, it really is a points-based computer system) does not mean that they scored no points whatsoever, or even that they're not disabled, just that they're not quite disabled enough to be Officially unfit for work. That's why we have the assessment process! To assess people!
To apply to be assessed is not "faking".
To have a level of impairment that falls just short of the ESA bar is not "faking".
There will also be quite a few applicants who suffered an acute injury or illness (for instance, they were in a car accident) and were advised to apply for ESA as a temporary or worst case scenario - but in the 13-week assessment period, they have recovered well so they have been moved to JSA or have returned to work.
To recover from an illness or injury does not mean that the illness or injury was "faked".
There are also the people who get placed onto Jobseeker's Allowance, and go to appeal, and win. The rate of people winning their appeals is around 40% and this increases to 70% where the appellant has someone to represent them. Regrettably, there are also a number of genuinely disabled people who simply don't have the wherewithal to fight an appeal, and have to attempt to survive without the benefits they need. I myself have been in this situation.
To be too ill to fight is not "faking".
There are people who, during their assessment period, are fortunate to find a suitable job which is prepared to make the necessary adjustments, or who, like myself, have enough personal support around them to enable them to be self-employed.
To return to the taxpaying workforce is not "faking".
A very few people will be fortunate enough to have other resources to fall back on. Perhaps an insurance payout of some kind, or a lottery win, or the sale of assets, will save them from the indignity of having to complete a process that treats them as the worst kind of fraudster from beginning to end.
To have alternative resources is not "faking".
Most significantly, there are those who die before the assessment phase is complete.
To die of a condition is perhaps the strongest possible indicator that the condition was not "faked".
I'd provide more concrete statistics, but we don't have them. Once you leave ESA, you're not monitored. We don't know how many of these people have got jobs, have died, have killed themselves, have left the country... no one cares. The Express just goes ahead and calls them all "fakers".
Subscribe to:
Posts (Atom)
