An Open Letter to the LGBT+ Community

I went to see Pride last week. Yeah, I know it was released a month earlier but my dad was in hospital at the time so I was mostly just seeing the A12 as I drove up and down it.

It was a period of British history that I know very little about: I was only 5 in 1984. I heard mumblings about miners; but what 5 year old actually pays attention to the news? And it was certainly a long, long, time before I realised I was gay.

I went to see the film after 3 nights of no sleep because of a shoulder injury. Due to the sleep deprivation I was just a tad over-emotional. I spent the whole film alternating between laughing and crying, and was in floods of happy tears at the end. The second the house lights came up I had to make a dash for the nearest toilet to hide until my red splotchy face looked less red and splotchy.

The miners were probably the hardest hit during that particular 4 year term of office. And it was deeply heartening to hear a story about another oppressed group the government loathed - the LGBT community - coming to the support of others in solidarity just because it was the right thing to do.

But after the film I couldn't shake the thought "where are the LGBT community now while disabled people are being kicked even harder than the miners were then?"

The Centre for Welfare Reform calculated that severely disabled people will be hit 19 times harder by the cuts than other people. So many cuts that even I probably can't remember to list them all. But here are just the ones I can think of off the top of my head:

• The creation of Personal Independence Payment to replace Disability Living Allowance. The intention was to reduce the budget by 20% by making the criteria stricter. DLA is only paid to meet care needs and mobility needs. It's to be spent on things like wheelchairs and having someone help you out of bed in the morning. Not exactly luxuries that a disabled person can cut back on. Did you know that now if you can walk a mere 21 metres you probably won't get that help to put towards buying a wheelchair? With the DWP and the private firms hired to carry out the medical assessments unable to organise a proverbial in a brewery; people are waiting for up to a year for their application to be processed and there are 145,000 people waiting for support they need to function.
• Employment and Support Allowance is the benefit for people too ill or impaired to work. There are 394,000 people waiting to have their application for that processed. 394,000 waiting to put food on the table. Such an appalling system that we regularly read about people who were so ill that they died of their condition while allegedly "fit for work". Larry Newman and Cecilia Burns are just 2 of those people. The company doing the fitness for work assessments got it so wrong so often that 40% of appeals against their decisions were successful.
• Two thirds of households affected by the bedroom tax contain a disabled person.
• In most parts of the country; working age benefit claimants have had their Council Tax Benefit cut by 10%.
• At the moment there's something called the Severe Disability Premium. It's not a benefit in its own right; it's a top-up premium on top of ESA/Income Support. The clue as to who is eligible is in the name: Severely disabled people. The eligibility criteria are so complex that only 230,000 people in the whole country are eligible. Under Universal Credit; the SDP is being abolished completely. Not made a bit stricter: Abolished.
• The Independent Living Fund, which allows 18,000 disabled people with the highest care needs to live in the community, is being closed next year.
• Social care is being cut to the point that continent people are being told to use incontinence pads because they're no longer allowed help to go to the toilet. Once I caught the local news while at my dad's house. A representative of Norfolk Council actually went on TV and said "we're cutting things like adult social care in order to preserve popular services like libraries." Disabled people are so loathed that council officials can go on TV and say that with their head held high.
• We're all aware how this government made it more expensive to get an education. Did you know that Disabled Students' Allowance, which pays for things like Deaf students to have a BSL interpreter, is being cut? They recently announced these cuts are being postponed. Not cancelled, just postponed.
• Access to Work, a scheme which funds support to allow disabled people to function in the workplace, has been utterly screwed up. Jess and Julie have both written recently about how these cuts are jeopardising their jobs. They are far from alone.

And these are only the cuts so far. Recently we've heard how the Tories want to cut housing benefit for 18-21 year olds, freeze working age benefits (which will affect disability benefits, despite Osborne's claim at the Tory conference), and pay benefits by cards instead of cash. Then IDS wants to charge income tax on support to pay for wheelchairs and for someone to wipe your butt, despite the fact that many disabled people don't see penny of it because it's immediately deducted to pay for support services. And, of course, Freud let it slip that he wants to be able to pay disabled people only £2 an hour.

Do you remember last Wednesday? It was a great day. For one day the entire country cared about how this government wanted to undermine disabled people's right to the same minimum wage as everybody else. He was the top story for most news outlets, he trended on Twitter all day: And for just one day it felt like the entire nation cared about our equal rights.

Then everyone went to bed that night and by the following morning most people had forgotten about us again. This week disabled people have been in court again fighting the Independent Living Fund closure. Where was the outrage this week that the government want to withdraw the funding that pays for severely disabled people to have food put in their mouths and their butts lifted onto the toilet?

I kind of get it. I mean, in 1984 LGBT people were really oppressed. Relationships weren't legally recognised, the age of consent for gay men was 5 years older than for heterosexuals. AIDS was misunderstood, treatments hadn't been developed, and it was far more stigmatised than it is today. There were no anti-discrimination laws protecting us from being fired for being LGBT or protecting us from being discriminated against by B&B owners when we just want a break for a couple of days.

Now we can get married, the age of consent is equal, HIV is a controllable chronic condition. We do have the legal right to sue our employer if they fire us for coming out at work and we can sue B&B owners who refuse us a room.

In 1984 LGBTs could look at miners and see people who were equally oppressed. The same can't be said of LGBTs looking at disabled people today. Except for those of us who are both LGBT and disabled; most LGBTs have the freedom to have a proper meal every day. The same can't be said for disabled people who are physically unable to cook, can't get social care for someone to help them with that, and so end up eating mostly just crisps. Most LGBTs can have a shower every day. The same can't be said of disabled people who were forced out of their accessible home by the bedroom tax, no longer have an accessible shower, and can only get clean by wiping themselves down with a flannel.

You have to remember that the LGBT community and the disabled community have so much in common in so many ways. We both still experience discrimination, even though it's illegal and we have the law on our side. It's a fight we both face. Hate crime affects LGBT people just like it affects disabled people. Some people are even attacked for being both disabled and LGBT. Both disabled people and LGBT people are massively unpopular with the senior party in the coalition: Not only are the Tories stripping away all the support systems that allowed for the equality of disabled people, but more Tories voted against equal marriage than for it. The law only went through because of supporters in the other parties.

The main difference between the 2 communities I belong to, of course, is society's response. When lesbians were thrown out of Sainsbury's, protesters quickly responded. A few days later a blind woman was kicked out of Tesco. Protesters were nowhere to be seen. Disabled people are more likely to be mocked for going shopping than supported if we get discriminated against in store.

In Pride we see Lesbians and Gays Support the Miners (LGSM) helping to fund and distribute food parcels to the striking miners. Where were the food parcels for David Clapson or Mark Wood? I don't mean to suggest that the LGBT community is in any way responsible for such tragedies for not being more supportive: But the handing out of the food parcels had such a resonance with the issues of today.

The film depicts LGSM getting to work before consulting miners about what it is they actually need. If LGBTs started supporting disabled people (LGBTSDP?); I'd beg of you to ask us how you can help. Disabled people's lives have historically been dominated by non-disabled people thinking they know what's best for us. There's a common saying in the disabled community "nothing about us without us," and that applies as much now as ever. A couple of years ago UK Uncut organised a protest specifically about disability benefit cuts. But because they didn't consult with disabled people for the meet-up arrangements: They chose to meet at a tube station that has no access for mobility impaired people.

Disabled people have loads of ideas for creative ways of challenging the cuts; but we need help to pull them off. We've written films about the ILF closure that we can't find anyone to produce. We organise protests and sometimes only 10 people turn up. There are far more LGBT people with social influence than disabled people. When there's a story like this week's court case we need the help of people with prominence to amplify our message because our collective voice amounts to a mere whisper; where potential LGBT allies have the power to really shout about it. Bronski Beat supported the miners; who is going to support us?

Another very common saying in the disability community is "rights not charity". In Pride LGSM start out their work with the collecting buckets to raise money. At the moment the disabled community is in a paradoxical position: We need to raise money in order to fight for the rights which are being stripped away. Paypal is the 21st century collecting tin and Disabled People Against Cuts are currently asking people to donate 50p to carry on their excellent campaigning.

Pride was a beautifully told story of the LGBT community rushing to the support of those who really needed it. I can't wait for it to come out on DVD so I can watch it again. But ever since seeing it I haven't been able to shake the slight feeling of sadness. There have been so many wonderful changes in the last 30 years that have benefited both communities I belong to. As a disabled person I first had the Disability Discrimination Act, which then became subsumed by the Equality Act. As a gay person I also have protection under the Equality Act. I can even get married now!

But the passion LGSM had for supporting people whose lives were being utterly destroyed by the government: The film just made me acutely aware that disabled people doesn't have that same support. And as someone with a foot in each community, that awareness is slightly frying my brain.

So, LGBT community. Please help us. Our equality, our independence, our jobs, our education, and even our lives depend on winning this fight.

17 Cities to Take Action Against Atos and Government's Welfare Policy Tomorrow

Press Release from Benefit Claimants Fight Back

Towns and cities around the UK will see protests tomorrow (30th September) against Atos, the IT Company responsible for carrying out the con-dem government's Work Capability Assessment. As part of a National Day of Action Against Atos, organised by disability, claimant and anti-cuts activists, people will be gathering outside Atos' offices in Edinburgh, Leeds, Manchester, Nottingham, Brighton, Chatham, Cheshire, Birmingham, Glasgow, Hasting, Norwich, Oxford, Bristol, Chester, Plymouth, Sheffield and York.

In London a demonstration is being held outside the BMJ Careers Fair where Atos will be exhibiting in an attempt to recruit doctors to work on their Disability Assessment teams. Thousands of people have been denied or stripped of vital benefit because of decisions made based on Atos' assessment procedure which involves a short interview and a computer based test. Many people have had conditions worsened, either by being forced into the workplace, having much needed money withdrawn or the stress of the assessment process, which has been described as relentless. Sadly some have taken their own lives after hearing of Atos and the DWP's decisions to remove their benefits. Even people with cancer and other terminal illnesses have been deemed 'fit for work'. The government has pledged that this form of testing will be extended to all disability and health related benefits.

This week over one hundred groups and individuals signed a letter to the BMJ and the RCN urging them to stop allowing Atos to recruit at their events and in their publications: http://benefitclaimantsfightback.wordpress.com/open-letter-on-atos-healthcare-to-the-bmj-and-rcn/

An online protest will see companies and organisations which do business with Atos contacted and informed of this company's 'callous and cruel' treatment of disabled and sick people.

Supporters of Disabled People Against Cuts have said that "As long as ATOS continues to treat disabled claimants little better than animals they will continue to protest against them and seek means to discredit them."



ENDS

Hardest Hit Demo: Pros and Cons.

Tomorrow will see the Hardest Hit campaign against the cuts action in London. It is an opportunity to protest the cuts which will affect disabled people so devastatingly, and join together with other disabled activists.

If you can't make it to the march, for whatever reason, you can protest online and there is also a really good guide for writing to your MP.

Full details of the route, and frequently asked questions have been made available, and they have also created a flickr group, a twitter list and a facebook page, tuning in well to the influence of social media in recent protests and campaigns. Hardest Hit is also including lobbying MPs about the Welfare Reform Bill into the protest, which can also make a palpable difference to the situation of disabled people in Britain.

Hardest Hit has the potential to be a huge and important event for increasing visibility of the issues facing disabled people during these so-called 'times of austerity', and the involvement of several big charities may increase the likelihood of media interest. At a time when disabled people are being constantly vilified in the right-wing press, raising awareness of the issues we face could begin to change perceptions and increase support for disabled people in Britain.

The whole of the Where's the Benefit? is dedicated to talking about why the welfare cuts are not only demeaning but downright dangerous, and it would be wrong of us not to mention Hardest Hit. However, not everyone on the team, myself included, feel we can fully get behind the demonstration.

Some of the big charities and organisations involved in organising the Hardest Hit campaign are ones which, historically at least, have been a part of the oppression of disabled people. Disabled People Against Cuts have publicly withdrawn their support of the demo, saying,

Do we ignore the fact that organisations might be viewing disabled people as ‘helpless cripples’ so long as they are prepared to come out and oppose the cuts? We believe it is precisely because we are facing severe attacks upon our rights and lives at this moment in time that there is even more reason than ever to ensure that the messages we’re sending out and the actions we take are clear and work in the long term best interest of all disabled people. I make no apology for saying that DPAC refuses to “turn a blind eye” and betray certain groups of disabled people for some mythical “greater good”. Some may accuse us of cutting off our noses to spite our face or needlessly creating barriers where none exist, however, it is our view that it would be hypocritical of DPAC to speak of defending people’s rights, including the right to independent living and self-determination, if we gave a nod and a wink to anyone who is engaged in activity undermining these rights.

Other concerns involve the motives of the charities. Miss Dennis Queen writes,

When campaign success is going to happen you can count on these charities use their plentiful resources to to sweep in and be there to help government 'resolve' the anger, fear and penalties disabled people face. They get to sit at the table with Government and make sure THEIR business interests get served first, not the interests of disabled people. They take control of matters for government, claiming to be the people who represent disabled people and 'look after us' so nobody else need get bogged down in the detail.

A post I wrote last December talked about Disability Works UK, who were bidding for contracts to carry out the Government's compulsory back-to-work schemes. Disability Works UK is made up of 9 disability charities and organisations. 4 of these (Mind, Mencap, Scope and Leonard Cheshire Disability) are listed as supporters of Hardest Hit. I find it hard to understand how they can support a campaign against the cuts, while seeking to profit from the legislation that will result. Would we support a march organised by ATOS or A4e?

But the aspect which caused perhaps the most concern was the announcement that Maria Miller had been asked to speak. Maria Miller is the Minister for Disabled People, and she is fully behind the disability benefit cuts. She has, unsurprisingly, turned down the invitation to speak at Hardest Hit, but the fact that she was invited in the first place poses yet more questions about the motivations of the march's organisers.

There is always a fear that it is wrong for us to show disunity in public. Will people use that to discredit the movement as a whole, or the good done by parts of it? It's possible, but I also believe that we are doing ourselves a disservice if we do not speak up about what concerns and hurts us.

Where's the Benefit? are not endorsing the event, nor are we opposing it. We are here to report on and discuss issues to do with disability benefit cuts, and the Hardest Hit march is without doubt a part of this. Many disabled people are supporting it, and everyone hopes that it is a great success. We all want change, and for many, Hardest Hit is one step towards this. It is well organised, well publicised and could make a real difference. The potential differences in motives and structures are less important than the message, and the impact that this campaign could have. However, for other disabled people, it is more problematic, for all the reasons I have outlined above.

So for those of you who are participating, I hope it is fantastically successful. For those not, there are many other ways to protest the cuts. Keep reading here and take a look at DPAC's Week of Action against ATOS Origin, for a start.

(cross-posted at incurable hippie blog)

March 26 March

The TUC have (finally) released the access info for the March on the 26th of March.

As a result DPAC have officially announced that they will be taking part.

If you are at all able to make it (even if you can only do the shorter route) I highly recommend that you do; disabled people need to be seen and heard at this event. For example, if you're not a wheelchair owner but have concerns about your ability to remain upright for the march it's worth remembering that the Red Cross have a wheelchair loans service. It's also worth noting that DPAC have a page where people can find "buddies" for rallies if you think you might need some assistance on the day.

If you're really, truly, unable to make it then DPAC have also made plans for protesters to carry photos of those who wanted to be there but are too ill.

I look forward to meeting lots of you on the day.

Liz Carr's speech at Right to Work People's Convention

This is the speech Liz Carr gave at the Right to Work People's Convention last Saturday on behalf of DPAC.



Thanks to Liz for sending me a transcript which is available below the jump:

National Day of Protest Against Welfare & Housing Benefit Cuts

Yesterday I went down to Whitehall to protest opposite Downing Street as part of the National Day of Protest Against Welfare & Housing Benefit Cuts. I was a little bit late so the protest was in full swing by the time I got there. So as soon as I arrived my heart broke; there were only about 30 people protesting. I realise that disabled people are seen as largely unimportant by society so I wasn't going to see the 30,000 that come out to protect education, but to see so few was devastating.











When the 12:30pm Downing Street protest wound down a few of us went to grab a pub lunch before heading to Trafalgar Square for the 3pm protest there.

Once in Trafalgar Square DPAC had planned to perform an alternative nativity play under the tree. Trouble was, Mary hadn't turned up. There was much bustle while they tried to find a new Mary (I declined the invitation).

Eventually a Mary volunteered and everyone moved themselves under the tree.



















The Heritage Warden getting pushy.



The discussion after the Heritage Warden said he was going to call the police. The police came and said that we were fine there as long as we were quiet.



I missed the first couple of seconds of this speech which places the monologue in 2015.

It was at that point that I left. The rain had soaked through my gloves so my hands were getting cold (over the years I've broken almost all my fingers and when my hands get really cold all those old fracture sites feel fresh). The rain had also soaked through the knees of my trousers (being a wheelie my knees are at an angle to catch every drop of rain that falls) and my boots were moist and heading towards soaked through (and just like my fingers I've broken a hell of a lot of bones in my feet and they don't appreciate the cold either).

My overwhelming experience of the day was disappointment: Disappointment that so few people care enough about our social housing and welfare state. The way I see it, for currently privileged people campaigning to save social housing and benefits is like taking out an insurance policy. You hope you won't need it, but it's there as a safety net in case something goes wrong in your life plan. On Twitter recently there's been much talk among students, trade unions, UK Uncut types and general leftie tweeters about "#solidarity" and I know of many disabled people who've shown support for others facing cuts: Where was the solidarity for us?

A lot of disabled people are not in a strong position to protest against the cuts. Some of us are housebound or bedridden. Some of us have crappy immune systems and this is a really bad time of year for viruses flying round, or are just permanently too ill to go out for a whole day. Some of don't have suitable mobility aids or access to transport that would allow us to get to a demo. Others of us have bodies that couldn't withstand the cold and rain on a day like yesterday. I know my bones and joints would've been happier if I'd stayed home yesterday but I felt that I couldn't sit in my council flat hoping someone would protest on my behalf because if I did I might not have a council flat left in a few years!

Then there are the disabled people who were scared into not coming yesterday. Because we live in a culture where many disabled people are constantly afraid of leaving the house in case they get spotted walking/socialising/shopping and accused of benefit fraud (thanks to campaigns like The Sun's) people are too scared to protest. And apparently if you can protest you must be faking your impairment.

Then there were the people too scared to come after witnessing violent scenes at recent student protest, particularly what happened to Jody McIntyre. A lot of disabled people injure more easily than Joe Average (I myself have got brittle bones) so it doesn't take too vivid an imagination to picture yourself more likely to get hurt than most protesters. And if the non-disabled Alfie Meadows can be left needing brain surgery...

It's quite depressing that the government is not only disproportionately targeting the cuts at disabled people, but they're also scaring us into not using what little voice we have. If the government have got us too scared to protest by making sure everyone thinks we're scroungers and the police have terrified us into not hitting the streets then they can continue with the attacks on us by saying "well, no-one objected."

The next protest is on January 24th 2011 and if you can, I'd strongly urge that you come. Even you non-disableds, whether it's out of solidarity or as an insurance policy for your future.